10 Weeks To Go !!

So, it was back to school and kindy today !!

I always look forward to the school holidays when we can have a week or so together. It’s much more fun than my wife leaving early like she does and then I taking the kids where they need to be. Pretty enjoyable holidays as usual.  The 2nd week always seems to go quicker than the first. Once the holidays have come to an end I’m kinda ready to carry on.

So, my daughter will be at school next year, so I’m very excited. It will be good no longer having the 10-15 minute walk to kindy. She still travels in the push- chair which she will do until she is finished there. We walk home after kindy. Next year it will be just down the street for both of them. School is only a few hundred metres away. Not even 5 minutes walk.

I’m often getting asked what I will be doing with myself, how I will full in my time. Not 100 % sure yet. My goal is to work from home. I’m slowly making progress with my online businesses. We’ll reaccess things at the end of the year.

Attraction Marketing System
 

My Epilepsy carries on. Looks like I have had about 7 episodes in the last month. That’s probably a bit of an increase. There was a stage I was having 2-3 a month, maybe 4. So, who knows why.

Most of these turns continue to be brought on by emotions. For example, yesterday we had friends for lunch. When they were about due to arrive, I heard a knock at the door. So, I went to open it…….But it turns out it was my son. He thought it was funny to pretend someone was there.  Our friends may have arrived pretty soon after that. I must have gone and had a sleep. When I came out I didn’t really have much to say. It took me a while to get back to myself.

There still isn’t much progress when it come to the NZ Epilepsy Foundation. I actually missed last months meeting, but I will be going to this months in a couple of days.

So, 10 more weeks of school…..

 

bryce rae

 

School Holidays

What do you think of the photo ? Not bad for a 7 year old !!

lifeline

The Governments Axing Of Lifeline

I was chatting to a friend via Facebook this morning. My friend is one that dedicates some of his time (voluntary) to Helpline.

Helpline provides free 24 hour health assistance for people
with issues such as depression, bullying and suicidal thoughts. I am keen to perhaps get involved in the future.

So, this morning he told me that the Government is withdrawing funding, so Helpline only has enough money to run for another 6-12 months. This was a real surprise because New Zealand has some of the highest suicide rates in the world.

So Helpline is doing everything possible to stay afloat. The New Zealand Government has very much increased the amount of money put into roading. Our road toll is far to high.

Here is some statistics for you. If you look at current figures, the Government is putting over $600,000 per person saved from road death or serious injury – about 900 people over 10 years. In that time, based on current figures , over 5000 may die from suicide . I know it’s not really a positive conversation, but these are obviously the facts. So you would think that they would be prepared to invest more money for them wouldn’t you ?

Government says it has increased mental health spending by 300 million over the last 7-8 years, which is an impressive figure. They say that helpline will be replaced with other resources, but will these resources be able to fill this role ?

Only time will tell I guess… I’ll watch this space.

Click here to watch the piece on “Seven Sharp” – NZ Current Affairs Show

paralympics

The Paralympic Games… Just As Enjoyable

 

Have you been watching any of the Paralympics ? I have been watching a bit. New Zealand is doing very well, currently sixth overall for medals and first per capita .

Recently there was a discussion about whether the Paralympics get as much coverage , attention than the Olympics. NO, it certainly doesn’t, which is disappointing . It was suggested that it may be a good idea to have the Paralympics first. By the time the Olympics is over, many would be sick of sport. I guess that’s a possibility.

Many say that Brazil is pretty much broke with regards to the Olympics, which is understandable.

New Zealand swimmer Sophie Pascoe just won her 15th medal. This is her 3rd Paralympics.  15 medals, that’s pretty impressive. Many of the swimmers do very well, considering I have seen ones without hands, without arms.

Another Kiwi ( New Zealander ) that is doing well is Blade Runner Liam Malone. He has won gold medals in the 200 & 400 m and a silver in the 100m. In the process of this he has broken world records set by Oscar Pistorius. I would think Oscar Pistorius sports days are over….

Watching these people should be pretty inspiring for many. To see them do what they do, with the issues they have is amazing. I do believe that we should encourage our kids to win. But, if they don’t win it isn’t an issue. Competing is great on it’s own. Some of these people at the Paralympics would know that it’s most likely they don’t have a chance when it comes to winning, but they are still giving it a go. It would be very exciting to be representing your country.

So, lets hope the medals keep coming for New Zealand. I think they have about 17-18 as I write this . I think our record for these games is 24, which was in 1984.

So, lets hope the medals keep coming !!

 

 

all blacks epilepsy

All Blacks Visit Kids With Epilepsy

The All Blacks  ( New Zealand Rugby Team)  recently visited kids in hospital with Epilepsy. This was great to see on our 6pm news, especially when it was on Daffodil Day here in New Zealand. Daffodil Day symbolises hope for 1 in 3 New Zealanders affected by Cancer. Of course my heart goes out to anyone affected by Cancer, but it does receive alot of attention compared to Epilepsy.

Sometimes here in NZ it seems like the world revolves around the All Blacks…..or at least the media see it that way. So to have them visiting Kids with Epilepsy was very pleasing.

( click the pic below to see a short video )

all blacks epilepsy

Positive Attitudes About Aging

It’s kinda funny that everyone wants to live a long life but the idea of getting old doesn’t really appeal to anyone. It’s a bit contradictory don’t you think ?

Maybe we could say that life is like wine, it becomes better with age. But there are good things about all stages of life. I now think about my teenage years and think how sweet it really was. Back then it was stressful with things like school work and popularity. Some of these things I now realize are so silly.

I guess we can’t do much about aging. I do find it hard to believe that 40 isn’t that far away for myself ( I’m 35 ). It’s a bit scary, because it seems like I just left school. The last 15 years have really flown by. I used to think how I was only a third of the way through my years, but I guess I’m a bit further down the track now.

It’s up to each of us with some aspects of aging. There are some out there that look much older than they are. How do you feel about aging ? I read in a magazine that people that have a bad attitude towards aging have a slower walking speed and worse cognitive abilities than ones positive about aging. DO YOU BELIEVE THAT ?

walking

I do look forward to the years to come though. I love my children but I do think about them getting older. I’m not saying I wish they were turning 18 tomorrow. As they get older they come more independent. As I have said in recent posts, our youngest will be at school next year. I’m exciting for her and myself.

It’s often said that people don’t reach their best until their later years. That’s true in some instances. Think of the histories most successful people. I look forward to that myself. We also have the ones in their early twenties, maybe even late teens that have reached unbelievable success.

In today’s society, T.V , magazines and social media have altered the way we look at getting older. Well, social media is where it’s at because of young ones. Technology is what the world is all about. I recently watched on 60 minutes how dangerous technology is. That’s true. It’s exciting but also frightening. If we aren’t careful, many will end up unemployed. During the discussion of this on 60 minutes, they talked of a McDonald’s restaurant been run by robots. FREAKY !!

So, try to keep a positive attitude and look forward to what is yet to come !!

Todays Turn

Hey Hows it going ? I hope life is treating you well !!

Me ?  Well , things are as usual. My days pretty much consist of taking kids to school and Kindy and doing the chores around our home. I spend a bit of time in front of the computer as well. I have a few projects in progress.  Have you been enjoying the Olympics ? I wasn’t really that excited before  it all started but I have been enjoying it.

Today I had my 2nd turn this month which I suppose isn’t too bad.  My daughter and I were on the way to school to bring my son home. We are very lucky that it isn’t even 5 minutes walk away. I don’t think we realised how good it would be when we moved here a few years ago. I can’t wait until next year with both kids at school.

Anyway, back to my turn. We had pretty much got to school and my daughter saw a girl from her Kindy. They smiled at each other, kinda said hello. Both myself and the daughters mother noticed. Anyway, just as this happened, I felt a wee bit funny. As with 90 % ( maybe even more ) of my turns these days, I know it is happening. I think we wandered about school briefly. I must have been a bit out of it, a bit lost. But my son said I was at his classroom as usual, like I am everyday. I can’t remember that. I can’t remember the walk home either.

As I said, I know when most of my turns are going to happen. I think when I say to my wife that I feel like I’m going to have a turn, doing that scares it away. Sound a bit odd  ?

So, the rest of the afternoon wasn’t much fun.  I never really enjoy the afternoons  that much .  I got dinner ready and sorted out the days washing.   I always look forward to my wife getting home . The main thing that used to bore me was the thought of entertaining the kids in the afternoons. Maybe I worried about it to much. They pretty much entertain themselves these days.  They don’t sit and watch T.V in the afternoons. They do this in the morning though. It fills in the hour or so before it’s time to leave.

 

So, that’s today and things at the moment.

bryce rae

 

Get Rid Of The Cotton Wool

So, with the likes of Epilepsy, are there things we can and cannot do ? Well that’s really up to the individual. When we look at childhood, it should be best time of our lives.

” Go out and break a leg”

When I was a boy, we ran around outside, we jumped on the trampoline, all that stuff.   We didn’t play on IPads, IPods….whatever. We got our kids a trampoline for Christmas !! I always tell my son that I got over playing computer games when I was 10. Maybe it isn’t completely true, but there is nothing wrong with stretching the truth just a little bit.  I’m proud to say I have never played on a Playstation or Xbox.

playground

Kids are far to much in Cotton Wool these days. Recently in the paper there was a story about a playground been shut down a few days after it’s opening. Why ? Well, they decided it may have not been completely safe.  Did they really need to shut it down ? There is nothing wrong with a bruise or a scratch.  They do us good. They toughen us up. It’s frustrating how kids ( MINE !! ) think they need a plaster whenever they see blood. My kids seem to find a plaster exciting. If one has one, the other one wants one too.

People are way to protective. Children need to learn to do things themselves. Children need to become independent. There is no need to walk your child to their classroom. MAKE THEM CARRY THEIR OWN BAG !!  20-30 years ago, many kids walked to school, but everyone seems to drive them these days. Yes, the world is always changing….. we have a role to play in that.

You aren’t going to be around your children forever. Take a balanced view. There is benefits to potential risk just like there is benefits to activities. Think of swimming. Everyone should have a swim, as long as not alone. What else…. Cycling, Horse Riding. Things like that. As long as a helmet is being worn. Helmets really frustrate me here in NZ.  Many don’t bother wearing one . It should be compulsory and not doing it should bring a fine…. maybe $50.

Getting out there is part of growing up. It’s about getting out there with others. We have a life where we are constantly interacting with others, whether it be talking with friends and family, talking to your neighbor, or even talking as your going through the check-out at the Supermarket.

So, if you are using Cotton Wool , whether it be with yourself or the ones you love, my advice would be to lose it.

 

bryce rae

 

Epilepsy & Education

Epilepsy & Education

Most Children with Epilepsy should be able to attend normal mainstream schools. They should be able to take part in all activities. As long as the school is informed of the Epilepsy. I remember in my school days there were a few things I wasn’t allowed to take part in, which was a little bit silly. I was quite capable. There was a teacher or 2 that were quite aggressive. Because of a lack of understanding, one thought I was just messing around. At  Polytech ( Tertiary Education), I studied Landscape Design. We did alot things in gardening, such as spraying. I was never allowed to do that. Once again, it seemed silly.  I come from a Dairy farming family and I was very active on the farm. I had my own motorbike from a young age.

Its may be a good idea to involve other children in ones Epilepsy as well. How ? Well,  If they are told about ones Epilepsy, they can learn what to do when a seizure occurs. It will show the children that there is no reason to be scared or panic.

There may be some that won’t be able to attend school.  This may be the case if they have many seizures. When I hear of people that have many seizures a day, I think about how lucky I am. Some children may have additional problems. Maybe their Epilepsy leads to learning or physical  difficulties. Many children these days seem to have learning issues. I sometimes wonder how real it all is. These sort of issues weren’t as common when I was at school.

My education was effected by my Epilepsy. When it arrived , I was 13-14. I had a few side effects such as gaining weight and tiredness. That’s funny, because since then I have had opposite effects. I have felt that I can really eat anything and not gain weight. I still try to not eat to much junk. Also with the sleeping. I’m not the best of sleepers. I’m often asleep in front of the T.V at 7pm, but only end up spending 3-4 hours in bed. HABIT , HABIT, HABIT. Alot of this is due to bad habits.  There have been times that I have improved my sleeping. But then I go back to bad habits.

So, I am still very motivated to get Epilepsy out in the public. We need to get more people understanding it. I won’t stop until I am part of achieving this.

 

The First Seizure & Diagnosis Of Epilepsy

Most people experience a sense of shock, fear and panic when seeing a seizure for the first time. That is completely understandable.

Many people have very little understanding of Epilepsy… well, that’s what I have found. The best thing to do is offer moral support.

So, as you may know,a person having a Tonic – Clonic / Grand Mal Seizure should be laid on their side. This is once any convulsions have stopped. Something soft should be put under their head. Nothing SHOULD EVER be put in ones mouth when having a seizure.

ambo

Is it worth calling an Ambulance ?  If people understand the Epilepsy, it may not be required. This is something that has been frustrating over the years for myself. I now pay an annual membership fee to St John ( NZ Ambulance Service ). It is $80 a year and this covers our whole family. It’s very much worth it , because if you aren’t a member and receive their service, you are charged MORE THAN $80. I can’t recall exactly what it is.

It is important to make sure the history of what happened is recorded. Personally, I write about every seizure I have.

What happened ?

Why did it happen  ?

Where did it happen ?

By keeping record of my seizures / turns , I can see whether my number of turns is increasing or decreasing. It’s always interesting to count them once we reach the end of the month. It seems like my turns have increased a wee bit over the last 12 months.

We must remember that there are other conditions that cause a person to have a seizure like episode. Perhaps someone may jerk and twitch, fall down or lose consciousness.This isn’t necessarily Epilepsy. The likes of an E.E.G / Scans looks further into this. All the Scans , etc , that I have ever had have never shown an reason for my Epilepsy.

BUT HEY !!! LIFE GOES ON !!!

 

bryce rae

rain

Whats happening ?

Well, it’s been a while since I have posted. I guess the days just continue to fly by. My days are all pretty much the same. Nothing that exciting.

My Epilepsy hasn’t been to bad lately, but perhaps it was better 12 – 18 months ago. It’s probably 12 months ago that I stopped taking Topriamate. I had 5 turns/ seizures during May and 6 in April. I’m still going to stick to my Magnesium. Who knows whether it’s having any sort of effect. There is no stand out effect at this stage. Magnesium is good for you, so………why not.

Remember I had talked about our Epilepsy Family Fun Day ? Well that never happened 😦  A couple of the people on our board had health issues at the time, so I think that made some of the organisation difficult.But the biggest thing that continues to be the issue is people. Where are people with Epilepsy ? Most seem to be to shy. Maybe that is understandable, but I don’t feel that way. As I always say, of course I would lose my Epilepsy tomorrow if I could. Who wouldn’t !!  But, it’s really exciting to think I could be involved in getting Epilepsy to a better place than it currently is.

It’s been really rainy here in the last week or so.  I have had to endure the rain when getting the kids to school and kindy a few times.  No one likes walking in wet shoes and clothes. I wore my gumboots this morning !!! A bit heavier, but certainly drier.

Just one more week to go of this school term !!  Isn’t it scary to think we are half way through the year !!

Well, I guess I don’t really have much more to say…..sorry. None of that was really that exciting was it.

Until next time !!

bryce rae

 

 

happiness

Does Money Buy Happiness ?

money

Have you heard “Money doesn’t buy you happiness” ? I think you probably would have. I don’t agree with it 100 % . Something money does give you is piece of mind. Piece of mind that you can pay the bills, make your mortgage payments. One with a good steady income is able to relax more than the opposite. When money is an issue, it can be always on the mind. Saying from experience, it’s not at all pleasant.

Sometimes the people who say “Money can’t you you happiness ” are extreme wealthy or the complete opposite. An example is ones who are very successful.  We often hear this from the likes of famous people such as famous Musicians / Movie Stars. Perhaps they have had drug or alcohol issues. Some sort of addiction. Maybe they have been married several times. Maybe money is the reason they have had problems…they have so much money they can do what they want, when they want.

We often hear stories of people winning Lotto. They win thousands and thousands of dollars then end up broke. This is crazy. If one wins Lotto, they should think about the long term future. Money should be invested to provide a long term income. You could possibly get rid of your mortgage. I have read many times that is what should be done before anything else.

There is often debate that top earners aren’t paying enough tax. I disagree with this.  If one has a successful career and maybe a 6 figure income, they should be complimented. They are often looked upon as bad people.

So, where were you a few years ago ? I’m probably happier when I was a few years ago. I have things I want to achieve in the next 12 months. Some of this is in regards to money. This will make me alot happier.

Wealth could always be looked upon in more than just monetary terms. I’m glad I have a roof over my head. I’m wealthy because of my supportive family. They have and always be there for me regardless what the situation is. This provides a good piece of mind.

So, I think money can bring happiness …….

in the form of piece of mind.

And Remember…

DON’T SWEAT THE SMALL STUFF !!!

 

 

Come Out, Come Out …Wherever You Are !!!

That’s right, come out come out wherever you are !!!!

 

“Why” ? you may ask. Because people with Epilepsy can achieve alot more together. There are other people with Epilepsy out there. How much of a group do you have in our area, town , city ?

This is something we really struggle with. Let’s do the Maths. Here in Hamilton, we have a population of 150,000. Let’s say 1% of them have Epilepsy in their life. That’s 1500 people !!!!! That’s alot of people. Let’s scale it down. What about 1000 people, or even 500. Those are big numbers. Surely some of those people would like to be part of something. Think of it as a club, community, group…whatever you want to call it. We all have something in common. Yes, it’s something we would rather be without, but why not try and make the best of it.

There are many ways we make friends. Maybe you met your friends through education, such as University or School. Maybe you worked together. Maybe you played sport together. We make friends through our children as well. We have made some of our best friends through starting a family !!!

Forget about embarrassment. There is nothing to be embarrassed about. There are others out there with Epilepsy. That’s why it makes so much sense not to be embarrassed. I’m proud to say I don’t feel embarrassment about anything really. Perhaps this is because of my Epilepsy.I think it has made me stronger in a way. Yes, I like to be my best and make a good impression. We should always try and be our best. But, I try not to sweat the small stuff. I don’t care what others think of me. People out there don’t know your story, don’t know what you are doing with your life.

Remember your younger years ? Did you get called silly names ? Did you want to be one of the cool kids ? When we get older we realize how silly all of that was. If only I could have known what I know now 20 years ago.

We have made some ground here in New Zealand… we are slowly getting some events for people with Epilepsy in place. We still have a long way to go, but it is very encouraging. I’m very proud and excited to be part of it.

So please …..come out, come out wherever you are  !!!!

DSC08076

 Do you like my t-shirt ?

I’m not afraid to wear it out !!!seize the day

emotion sickness

Epilepsy – An Emotional Issue

Epilepsy is very much an emotional issue. Yes, it can be upsetting. We would all rather be without it, but that is not quite what I’m getting at.  90% of my turns / seizures happen in Emotional times. This is certainly the way it has been the last 10 days. In the last 10 days I have had three episodes of Epilepsy.  Let’s look at the situations that brought this on.

Continue reading “Epilepsy – An Emotional Issue”

Motorsport…..like watching paint dry

Sport can help us –

  • Beat stress
  • Improve confidence
  • Socialise and make new friends
  • Have healthy joints, bones and lungs
  • Control weight
  • Keep blood pressure and cholesterol low
  • Reduce risk of heart attack or stroke

Continue reading “Motorsport…..like watching paint dry”

obesity

Obesity…..a frustrating issue !!

Smoking

 

Obesity continues to be an issue all around the world. A big part of this is our children. I have talked about obesity before. It frustrates me. The media talk about steps that need to be taken / why obesity is a problem. As with so many things, it always seems to come back to the government. Some think that if there is a problem , it is always up to the government to sort it out.

Continue reading “Obesity…..a frustrating issue !!”

Not the best of days…

Today has been one of those days. You know , right ?
What I mean is a day when things aren’t much fun, you look forward to when the day is over. I felt a bit frustrated this morning. The usual bit of silliness that happens when the kids are having breakfast. My wife leaves just after 7 in the mornings, so it’s just me when the kids are eating. I often tell them to stop mucking around and eat their breakfast. They complain that the other is looking at them !! CRAZY KIDS !!!

Continue reading “Not the best of days…”