Get Rid Of The Cotton Wool

So, with the likes of Epilepsy, are there things we can and cannot do ? Well that’s really up to the individual. When we look at childhood, it should be best time of our lives.

” Go out and break a leg”

When I was a boy, we ran around outside, we jumped on the trampoline, all that stuff.   We didn’t play on IPads, IPods….whatever. We got our kids a trampoline for Christmas !! I always tell my son that I got over playing computer games when I was 10. Maybe it isn’t completely true, but there is nothing wrong with stretching the truth just a little bit.  I’m proud to say I have never played on a Playstation or Xbox.

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Kids are far to much in Cotton Wool these days. Recently in the paper there was a story about a playground been shut down a few days after it’s opening. Why ? Well, they decided it may have not been completely safe.  Did they really need to shut it down ? There is nothing wrong with a bruise or a scratch.  They do us good. They toughen us up. It’s frustrating how kids ( MINE !! ) think they need a plaster whenever they see blood. My kids seem to find a plaster exciting. If one has one, the other one wants one too.

 

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People are way to protective. Children need to learn to do things themselves. Children need to become independent. There is no need to walk your child to their classroom. MAKE THEM CARRY THEIR OWN BAG !!  20-30 years ago, many kids walked to school, but everyone seems to drive them these days. Yes, the world is always changing….. we have a role to play in that.

You aren’t going to be around your children forever. Take a balanced view. There is benefits to potential risk just like there is benefits to activities. Think of swimming. Everyone should have a swim, as long as not alone. What else…. Cycling, Horse Riding. Things like that. As long as a helmet is being worn. Helmets really frustrate me here in NZ.  Many don’t bother wearing one . It should be compulsory and not doing it should bring a fine…. maybe $50.

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Getting out there is part of growing up. It’s about getting out there with others. We have a life where we are constantly interacting with others, whether it be talking with friends and family, talking to your neighbor, or even talking as your going through the check-out at the Supermarket.

So, if you are using Cotton Wool , whether it be with yourself or the ones you love, my advice would be to lose it.

 

bryce rae

 

Epilepsy & Education

Most Children with Epilepsy should be able to attend normal mainstream schools. They should be able to take part in all activities. As long as the school is informed of the Epilepsy. I remember in my school days there were a few things I wasn’t allowed to take part in, which was a little bit silly. I was quite capable. There was a teacher or 2 that were quite aggressive. Because of a lack of understanding, one thought I was just messing around. At  Polytech ( Tertiary Education), I studied Landscape Design. We did alot things in gardening, such as spraying. I was never allowed to do that. Once again, it seemed silly.  I come from a Dairy farming family and I was very active on the farm. I had my own motorbike from a young age.

Its may be a good idea to involve other children in ones Epilepsy as well. How ? Well,  If they are told about ones Epilepsy, they can learn what to do when a seizure occurs. It will show the children that there is no reason to be scared or panic.

There may be some that won’t be able to attend school.  This may be the case if they have many seizures. When I hear of people that have many seizures a day, I think about how lucky I am. Some children may have additional problems. Maybe their Epilepsy leads to learning or physical  difficulties. Many children these days seem to have learning issues. I sometimes wonder how real it all is. These sort of issues weren’t as common when I was at school.

My education was effected by my Epilepsy. When it arrived , I was 13-14. I had a few side effects such as gaining weight and tiredness. That’s funny, because since then I have had opposite effects. I have felt that I can really eat anything and not gain weight. I still try to not eat to much junk. Also with the sleeping. I’m not the best of sleepers. I’m often asleep in front of the T.V at 7pm, but only end up spending 3-4 hours in bed. HABIT , HABIT, HABIT. Alot of this is due to bad habits.  There have been times that I have improved my sleeping. But then I go back to bad habits.

So, I am still very motivated to get Epilepsy out in the public. We need to get more people understanding it. I won’t stop until I am part of achieving this.

 

The First Seizure & Diagnosis Of Epilepsy

Most people experience a sense of shock, fear and panic when seeing a seizure for the first time. That is completely understandable.

Many people have very little understanding of Epilepsy… well, that’s what I have found. The best thing to do is offer moral support.

So, as you may know,a person having a Tonic – Clonic / Grand Mal Seizure should be laid on their side. This is once any convulsions have stopped. Something soft should be put under their head. Nothing SHOULD EVER be put in ones mouth when having a seizure.

ambo

Is it worth calling an Ambulance ?  If people understand the Epilepsy, it may not be required. This is something that has been frustrating over the years for myself. I now pay an annual membership fee to St John ( NZ Ambulance Service ). It is $80 a year and this covers our whole family. It’s very much worth it , because if you aren’t a member and receive their service, you are charged MORE THAN $80. I can’t recall exactly what it is.

It is important to make sure the history of what happened is recorded. Personally, I write about every seizure I have.

What happened ?

Why did it happen  ?

Where did it happen ?

By keeping record of my seizures / turns , I can see whether my number of turns is increasing or decreasing. It’s always interesting to count them once we reach the end of the month. It seems like my turns have increased a wee bit over the last 12 months.

We must remember that there are other conditions that cause a person to have a seizure like episode. Perhaps someone may jerk and twitch, fall down or lose consciousness.This isn’t necessarily Epilepsy. The likes of an E.E.G / Scans looks further into this. All the Scans , etc , that I have ever had have never shown an reason for my Epilepsy.

BUT HEY !!! LIFE GOES ON !!!

 

bryce rae

 

 

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Whats happening ?

Well, it’s been a while since I have posted. I guess the days just continue to fly by. My days are all pretty much the same. Nothing that exciting.

My Epilepsy hasn’t been to bad lately, but perhaps it was better 12 – 18 months ago. It’s probably 12 months ago that I stopped taking Topriamate. I had 5 turns/ seizures during May and 6 in April. I’m still going to stick to my Magnesium. Who knows whether it’s having any sort of effect. There is no stand out effect at this stage. Magnesium is good for you, so………why not.

Remember I had talked about our Epilepsy Family Fun Day ? Well that never happened😦  A couple of the people on our board had health issues at the time, so I think that made some of the organisation difficult.But the biggest thing that continues to be the issue is people. Where are people with Epilepsy ? Most seem to be to shy. Maybe that is understandable, but I don’t feel that way. As I always say, of course I would lose my Epilepsy tomorrow if I could. Who wouldn’t !!  But, it’s really exciting to think I could be involved in getting Epilepsy to a better place than it currently is.

It’s been really rainy here in the last week or so.  I have had to endure the rain when getting the kids to school and kindy a few times.  No one likes walking in wet shoes and clothes. I wore my gumboots this morning !!! A bit heavier, but certainly drier.

Just one more week to go of this school term !!  Isn’t it scary to think we are half way through the year !!

Well, I guess I don’t really have much more to say…..sorry. None of that was really that exciting was it.

Until next time !!

bryce rae

 

 

Does Money Buy Happiness ?

money

Have you heard “Money doesn’t buy you happiness” ? I think you probably would have. I don’t agree with it 100 % . Something money does give you is piece of mind. Piece of mind that you can pay the bills, make your mortgage payments. One with a good steady income is able to relax more than the opposite. When money is an issue, it can be always on the mind. Saying from experience, it’s not at all pleasant.

Sometimes the people who say “Money can’t you you happiness ” are extreme wealthy or the complete opposite. An example is ones who are very successful.  We often hear this from the likes of famous people such as famous Musicians / Movie Stars. Perhaps they have had drug or alcohol issues. Some sort of addiction. Maybe they have been married several times. Maybe money is the reason they have had problems…they have so much money they can do what they want, when they want.

We often hear stories of people winning Lotto. They win thousands and thousands of dollars then end up broke. This is crazy. If one wins Lotto, they should think about the long term future. Money should be invested to provide a long term income. You could possibly get rid of your mortgage. I have read many times that is what should be done before anything else.

There is often debate that top earners aren’t paying enough tax. I disagree with this.  If one has a successful career and maybe a 6 figure income, they should be complimented. They are often looked upon as bad people.

So, where were you a few years ago ? I’m probably happier when I was a few years ago. I have things I want to achieve in the next 12 months. Some of this is in regards to money. This will make me alot happier.

Wealth could always be looked upon in more than just monetary terms. I’m glad I have a roof over my head. I’m wealthy because of my supportive family. They have and always be there for me regardless what the situation is. This provides a good piece of mind.

So, I think money can bring happiness …….

in the form of piece of mind.

And Remember…

DON’T SWEAT THE SMALL STUFF !!!

 

 

Come Out, Come Out …Wherever You Are !!!

That’s right, come out come out wherever you are !!!!

 

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“Why” ? you may ask. Because people with Epilepsy can achieve alot more together. There are other people with Epilepsy out there. How much of a group do you have in our area, town , city ?

This is something we really struggle with. Let’s do the Maths. Here in Hamilton, we have a population of 150,000. Let’s say 1% of them have Epilepsy in their life. That’s 1500 people !!!!! That’s alot of people. Let’s scale it down. What about 1000 people, or even 500. Those are big numbers. Surely some of those people would like to be part of something. Think of it as a club, community, group…whatever you want to call it. We all have something in common. Yes, it’s something we would rather be without, but why not try and make the best of it.

There are many ways we make friends. Maybe you met your friends through education, such as University or School. Maybe you worked together. Maybe you played sport together. We make friends through our children as well. We have made some of our best friends through starting a family !!!

Forget about embarrassment. There is nothing to be embarrassed about. There are others out there with Epilepsy. That’s why it makes so much sense not to be embarrassed. I’m proud to say I don’t feel embarrassment about anything really. Perhaps this is because of my Epilepsy.I think it has made me stronger in a way. Yes, I like to be my best and make a good impression. We should always try and be our best. But, I try not to sweat the small stuff. I don’t care what others think of me. People out there don’t know your story, don’t know what you are doing with your life.

Remember your younger years ? Did you get called silly names ? Did you want to be one of the cool kids ? When we get older we realize how silly all of that was. If only I could have known what I know now 20 years ago.

We have made some ground here in New Zealand… we are slowly getting some events for people with Epilepsy in place. We still have a long way to go, but it is very encouraging. I’m very proud and excited to be part of it.

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So please …..come out, come out wherever you are  !!!!

 

 

 

 

 

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 Do you like my t-shirt ?

I’m not afraid to wear it out !!!seize the day

Let’s Be Positive !!

 

 

 

When we live with Epilepsy, we have to be positive.
Sometimes it may be hard, but remember that things could be worse. Think of all the good things in your life. Stay active. Don’t think you can’t do it because of Epilepsy. Epilepsy can be your motivation.

Remember….Our Aspirations Are Our Possibilities !!!!!

Epilepsy – An Emotional Issue

Epilepsy is very much an emotional issue. Yes, it can be upsetting. We would all rather be without it, but that is not quite what I’m getting at.  90% of my turns / seizures happen in Emotional times. This is certainly the way it has been the last 10 days. In the last 10 days I have had three episodes of Epilepsy.  Let’s look at the situations that brought this on.

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