Epilepsy & Education

Epilepsy & Education

Most Children with Epilepsy should be able to attend normal mainstream schools. They should be able to take part in all activities. As long as the school is informed of the Epilepsy. I remember in my school days there were a few things I wasn’t allowed to take part in, which was a little bit silly. I was quite capable. There was a teacher or 2 that were quite aggressive. Because of a lack of understanding, one thought I was just messing around. At  Polytech ( Tertiary Education), I studied Landscape Design. We did alot things in gardening, such as spraying. I was never allowed to do that. Once again, it seemed silly.  I come from a Dairy farming family and I was very active on the farm. I had my own motorbike from a young age.

Its may be a good idea to involve other children in ones Epilepsy as well. How ? Well,  If they are told about ones Epilepsy, they can learn what to do when a seizure occurs. It will show the children that there is no reason to be scared or panic.

There may be some that won’t be able to attend school.  This may be the case if they have many seizures. When I hear of people that have many seizures a day, I think about how lucky I am. Some children may have additional problems. Maybe their Epilepsy leads to learning or physical  difficulties. Many children these days seem to have learning issues. I sometimes wonder how real it all is. These sort of issues weren’t as common when I was at school.

My education was effected by my Epilepsy. When it arrived , I was 13-14. I had a few side effects such as gaining weight and tiredness. That’s funny, because since then I have had opposite effects. I have felt that I can really eat anything and not gain weight. I still try to not eat to much junk. Also with the sleeping. I’m not the best of sleepers. I’m often asleep in front of the T.V at 7pm, but only end up spending 3-4 hours in bed. HABIT , HABIT, HABIT. Alot of this is due to bad habits.  There have been times that I have improved my sleeping. But then I go back to bad habits.

So, I am still very motivated to get Epilepsy out in the public. We need to get more people understanding it. I won’t stop until I am part of achieving this.

 

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Whats happening ?

Well, it’s been a while since I have posted. I guess the days just continue to fly by. My days are all pretty much the same. Nothing that exciting.

My Epilepsy hasn’t been to bad lately, but perhaps it was better 12 – 18 months ago. It’s probably 12 months ago that I stopped taking Topriamate. I had 5 turns/ seizures during May and 6 in April. I’m still going to stick to my Magnesium. Who knows whether it’s having any sort of effect. There is no stand out effect at this stage. Magnesium is good for you, so………why not.

Remember I had talked about our Epilepsy Family Fun Day ? Well that never happened 😦  A couple of the people on our board had health issues at the time, so I think that made some of the organisation difficult.But the biggest thing that continues to be the issue is people. Where are people with Epilepsy ? Most seem to be to shy. Maybe that is understandable, but I don’t feel that way. As I always say, of course I would lose my Epilepsy tomorrow if I could. Who wouldn’t !!  But, it’s really exciting to think I could be involved in getting Epilepsy to a better place than it currently is.

It’s been really rainy here in the last week or so.  I have had to endure the rain when getting the kids to school and kindy a few times.  No one likes walking in wet shoes and clothes. I wore my gumboots this morning !!! A bit heavier, but certainly drier.

Just one more week to go of this school term !!  Isn’t it scary to think we are half way through the year !!

Well, I guess I don’t really have much more to say…..sorry. None of that was really that exciting was it.

Until next time !!

bryce rae

 

 

Come Out, Come Out …Wherever You Are !!!

That’s right, come out come out wherever you are !!!!

 

“Why” ? you may ask. Because people with Epilepsy can achieve alot more together. There are other people with Epilepsy out there. How much of a group do you have in our area, town , city ?

This is something we really struggle with. Let’s do the Maths. Here in Hamilton, we have a population of 150,000. Let’s say 1% of them have Epilepsy in their life. That’s 1500 people !!!!! That’s alot of people. Let’s scale it down. What about 1000 people, or even 500. Those are big numbers. Surely some of those people would like to be part of something. Think of it as a club, community, group…whatever you want to call it. We all have something in common. Yes, it’s something we would rather be without, but why not try and make the best of it.

There are many ways we make friends. Maybe you met your friends through education, such as University or School. Maybe you worked together. Maybe you played sport together. We make friends through our children as well. We have made some of our best friends through starting a family !!!

Forget about embarrassment. There is nothing to be embarrassed about. There are others out there with Epilepsy. That’s why it makes so much sense not to be embarrassed. I’m proud to say I don’t feel embarrassment about anything really. Perhaps this is because of my Epilepsy.I think it has made me stronger in a way. Yes, I like to be my best and make a good impression. We should always try and be our best. But, I try not to sweat the small stuff. I don’t care what others think of me. People out there don’t know your story, don’t know what you are doing with your life.

Remember your younger years ? Did you get called silly names ? Did you want to be one of the cool kids ? When we get older we realize how silly all of that was. If only I could have known what I know now 20 years ago.

We have made some ground here in New Zealand… we are slowly getting some events for people with Epilepsy in place. We still have a long way to go, but it is very encouraging. I’m very proud and excited to be part of it.

So please …..come out, come out wherever you are  !!!!

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 Do you like my t-shirt ?

I’m not afraid to wear it out !!!seize the day

emotion sickness

Epilepsy – An Emotional Issue

Epilepsy is very much an emotional issue. Yes, it can be upsetting. We would all rather be without it, but that is not quite what I’m getting at.  90% of my turns / seizures happen in Emotional times. This is certainly the way it has been the last 10 days. In the last 10 days I have had three episodes of Epilepsy.  Let’s look at the situations that brought this on.

Continue reading “Epilepsy – An Emotional Issue”

Not the best of days…

Today has been one of those days. You know , right ?
What I mean is a day when things aren’t much fun, you look forward to when the day is over. I felt a bit frustrated this morning. The usual bit of silliness that happens when the kids are having breakfast. My wife leaves just after 7 in the mornings, so it’s just me when the kids are eating. I often tell them to stop mucking around and eat their breakfast. They complain that the other is looking at them !! CRAZY KIDS !!!

Continue reading “Not the best of days…”

Magnesium & Epilepsy

Have you ever heard of Magnesium as a treatment for Epilepsy ?

                                                                                     Doing a google search, I see that there are a few articles / bit of info about Magnesium and nuts-73914__180Epilepsy. One would have to have a chat with the doctor first before they jumped in boots and all. But if you were to eat a few foods high in Magnesium, I don’t really see the harm. There is a difference between what we are eating and the medication we are taking. Our eating is a way to keep it all natural.

 

Continue reading “Magnesium & Epilepsy”

ALERT , ALERT !!! Medic Alert

 

 

http://www.positiveepilepsy.com

 

So, Medic Alert ….

Medic Alert is a way your information is kept about your health issue. You wear a wristband / bracelet or something around your neck. On there is what health issue you have, plus a pin number. Do you have something like this where ever you live in this big wide world ?

So say something happens and you end up in the arms of Medical staff, they can look at Medic Alert and see why whatever happened may have happened. Perhaps they will discover there are some drugs you can’t take. I know a few people that wear Medic Alert for this reason. Of course, mine is for my Epilepsy. One thing we haven’t done is kept my info up to date. I should go through my doctor and get things signed off. This would be what medication I take, etc. My medication has changed many times over the years.

I  always wear mine around my neck. I have worn a wrist band a few times, but it annoys me a bit. I guess it is something you’d get used to.

I recently received an email from Medic Alert. They were asking me to fill in a survey about my experiences . The main question was whether I had had any experience of medical staff missing my Medic Alert / not taking notice of it. This has happened to me several times.

I had a seizure ( turn) one day when I was picking my son up from school. Even though I probably would have been fine, some thought I was having a heart attack. So, the Ambulance arrived. Did they see my Medic Alert around my neck ? NO !! Don’t you think they should have looked for it ?

So from the look of the survey, it sounds like there has been other people go through this. We pay a yearly fee for my family to be covered for Emergency services like this. I think we pay about $90 a year.  Without this , it would pretty much cost that for using their services just once. So it’s good it covers all 4 of us.

Our Ambulance service comes from St John . They rely heavily on donations/ fundraising  from the public. Perhaps the government could assist them a bit more.

 

ambo

Living Life With Epilepsy

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This post is part of the Epilepsy Blog Relay™, which will run from March 1 through March 31. Follow along and add comments to posts that inspire you!

 

Most people with Epilepsy have an everyday life pretty much the same as everyone else. Well, that should be the goal. Epilepsy isn’t the same for everyone. There are a few things to think about, such as how often one has seizures and what sort of seizures they have. Epilepsy can limit some parts of life. For example, some with Epilepsy are unable to drive. There is normally a stand down period if one has a seizure such as 12 months. Others need to think about what their life would be without a license. Not been able to drive for 1 month, 6 months, 12 months. How would you handle this ?  Some with Epilepsy have NEVER had a drivers license. Employment can be another issue. It’s really about finding an understanding employer.

There could be problems with bullying & teasing. Maybe some will be excluded from groups. But, what one with Epilepsy needs to remember is that ANYONE CAN DEVELOP EPILEPSY AT ANY TIME. If one move away from someone who develops Epilepsy, then perhaps they aren’t the sort of person to be spending time with.

Parents need to continue to be positive. Communication is the key. As with anything, it’s good to talk. Talk about anything including Epilepsy.Supportive family and friends are essential. . Yes, everyone should be aware of ones Epilepsy and we all need to be taken care of when required. But, this can go to far. NO ONE SHOULD BE PUT IN COTTON WOOL.

                                     

 

thumbs upAttitude… Does one have a good attitude ?

Thinking positively is the key !!

 

 

 

One should always provide the likes of school /social groups with information. What type of Epilepsy and how often seizures occur ?  What they should do if a seizure occurs. The public generally have very little understanding of Epilepsy. If not informed, it’s possible a seizure could be misinterpreted.

One with Epilepsy should try and interact with others who have Epilepsy. This shows them that there are others out there with Epilepsy.They are not alone .This can sometimes be difficult. Some with Epilepsy like to keep their Epilepsy a secret. They need to understand there is nothing to be ashamed of.

They are not alone !!

 

NEXT UP: Be sure to check out sonyasstory.com  for more on Epilepsy Awareness.

For the full schedule of bloggers visit livingwellwithepilepsy.com/epilepsy-blog-relay.

Be sure to check out the Epilepsy Blog Relay Thunderclap to raise epilepsy awareness. And don’t miss your chance to connect with bloggers on the #LivingWellChat on March 31 at 7PM ET.

Understanding Epilepsy – Talk , Don’t Be Shy !!

I’ll say it again. There is a need for a better understanding of Epilepsy.

It’s not really that hard.  It’s like alot of things.

TALK ABOUT IT !!

ANSWER QUESTIONS !!

ASK QUESTIONS !!

DON’T BE SHY !!

As we know, the public really lack understanding. Everyone is different , just like our personalities. Imagine a world where everyone is the same. Maybe that will happen one day. Not quite everyone… but a few. All the talk of things Genetic’s. Imagine picking what sort of child you wanted to have. That’s sick !! If you were able to pick what colored eyes and hair your child was to have… If we get to that stage, we would have seriously lost the plot.

twins

 

 

ANYWAY, SORRY ABOUT THAT…
Back to the subject.

So, why do Seizures arrive ? Do they come when you are in certain situations ? When your tired or stressed ? These types of things create brain activity.

I keep a diary of my seizures or “turns”. I can often feel when they are coming.Can you predict when they are going to happen ? I wonder whether predicting them and telling my wife about it stops them from arriving. I always ask Alie ( wife ) what happened. I sometimes feel like I’m trying to gain attention…well, I sometimes think that is what she may be thinking. But, it’s all for my diary. That info is handy when you go and see the Doctor or Neurologist.

I’m super excited been involved in the NZ Epilepsy Foundation. I also run a Facebook page for my area. We may soon get some names of people who have Epilepsy. This will help us get a bigger group together.

 

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I’m very glad Hayden ( son ) really understands Epilepsy. He’ll be 7 in May. A couple of days ago we were walking home from school and and he kept asking me if I was ok. This was because I was repeating what I had said. I was fine.  We’ll have to get Claudia to that level of understanding in the next few years . She’ll be at school next year.

They need to know –

* What Epilepsy is
* What happens
* Why it happens
* What to do

Encourage questions !!

I love to Exercise. I have never driven so I walk a few KM’s every day.I’ll be going for an hours walk tonight. It’s time-out with music in my ears. It helps with Self-Esteem as well. I have looked to getting involved in some social /activity groups. This is where a license would be handy.  I use the bus service, but I have to consider where these meetings are and whether a bus is going there. It’s not the best idea to be relying on public transport late in the evening.But, life goes on.

This was a fairly random post about a few things wasn’t it. It was just a time to get a few things off my chest.

Have a good weekend !!!

Roxanne Davenport

Guest Post : Roxanne Davenport

I have gotten to know Roxanne because we have something in common, which is Epilepsy. She is very active online when it comes to Epilepsy and this very much benefits others. People like Roxanne is just what Epilepsy needs.

Take a look at her blog –  “SEIZE”URE THE DAY!

 

I didn’t consider myself an EPILEPSY ADVOCATE until after I had an unexpected seizure while I was driving.  I had been seizure free for seven years.  The drug store that filled my prescription switched the company that manufactured the generic medicine I took because it was cheaper for them.  After taking that different generic medicine one day, I had that car wreck.  My seizure wasn’t like my usual stare for thirty seconds.  This time I stiffened up, fought my daughter while she tried to take over the steering wheel and pull the emergency brake, and my foot stayed on the gas pedal.

I don’t remember anything.  I don’t remember hitting multiple mailboxes, swerving side to side on the road, and then hitting a tree.  Thank goodness the tree went in between me and my daughter.  I didn’t come out of my seizure until someone was pecking on my car door window.  Then I noticed someone else carrying my daughter from the car to lie her down on the ground.  My other daughter in the back seat was little and had to be in a car seat.  Thank goodness she was restrained and didn’t have any cuts or bruises.  My oldest daughter’s ankle was shattered!  She has had five surgeries in the past 6 years.  Finally her ankle had to be fused with titanium.  I’m not blamed for the wreck, every time someone asks what happened to her ankle she just says “I was in a car wreck”.  Never once have I heard her say that I did that.
While she was out of school, I wrote my Congressman and fought my insurance company about taking generic epilepsy medicine.  I WON!  Brand name medicine is what the doctor orders for me now.  I don’t drive though.  I found a way to deal with that.  Since I can’t make it to epilepsy group meetings because I don’t drive anymore, I can talk to people on line.  Meeting people from everywhere!
Something I am doing now that I never thought I would do, WRITE.  I used to work in the medical field and would talk to patients about epilepsy.  Now that I am not working, it’s amazing at how many more people I have talked to.
Spreading EPILEPSY AWARENESS is what I do now.
Genetics

Epilepsy Blog Relay : Will My Children Have Epilepsy ?

 

This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you!

Genetics

 

Many people around the world are wondering if Epilepsy is genetic.  Here we’re going to discuss this in detail.  It’s not uncommon for people to be curious about this during their child rearing years.  The last thing a potential parent wants to do is pass on their health issue to their offspring.  We’ll also discuss the likelihood of doing just that.  Understanding the facts goes a long way in helping to uncover the myths surrounding this condition.

Epilepsy can be passed down from generation to generation.  That doesn’t mean a person’s children are guaranteed to have it.  It simply means that their likelihood of having Epilepsy increases.  This is true if the father of the child has Epilepsy.  It should be noted that if the mother has Epilepsy, the likelihood of the child having Epilepsy is slightly higher. A woman should question the medicated she is taking, whether there is a chance of that effecting her baby. I have recently learned about Foetal Anti -Convulsant Syndrome. FACS occurs when an anti-convulsant drug, such as Epilim, is taken by a mother during pregnancy.  It crosses the placenta and through the developing fetus. But, once again, not all woman on these medications will have a child effected by FACS.

I don’t think Epilepsy should prevent  a couple from considering starting a family. But, everyone’s case is different and health professionals can give advice.  It should also be noted that a sibling is at higher risk of Epilepsy if their brother or sister has it.  With this said, the risk is still fairly low.  While it’s definitely higher than in the general population, the risk is minimal and shouldn’t stop anyone from considering expanding their family.

You should also note that Epilepsy is not contagious.   You can’t pass on Epilepsy through a hug or a cough.   No one should ever be concerned about contracting Epilepsy from someone else.  It simply isn’t possible and any concern is based on irrational thoughts.

Epilepsy can also be caused by brain trauma.  If this is the cause of Epilepsy, then it’s not genetic and therefore can’t be passed on.  This is a common form of Epilepsy. Any traumatic head injury can be the catalyst for Epilepsy.   Those who repeatedly have their head hit are at higher risk of developing Epilepsy. Head protection when riding a bike, or playing some sports is a must.

Never lose sight of the fact that Epilepsy and seizures can be treated.  While this is a serious condition, millions of people around the world live productive lives with it.  Always make sure to take your medication as prescribed.  A close relationship with your doctor is a must when having this condition.  It’s the best way to make sure that it’s under control.  You’ll also be able to bring up any concerns you may have in regards to passing it on to your children.

I have a 6 year old son and a four year old daughter. Being a Stay At Home Dad, I am responsible for them most of the time. We have now reached a stage where my son understands my Epilepsy and knows what steps to take if I have a complex partial seizure.

I developed my Epilepsy during Puberty. No one in my family has Epilepsy. All tests ( MRI & EEG ) I have ever had have never shown any reason for it, so I wonder why. We all wish for the best health for our family. I do think of my children developing Epilepsy. Lets hope for the best.

NEXT UP: Be sure to check out tomorrow’s post at  http://www.gotchababe2015.co.uk/ for more on Epilepsy Awareness. For the full schedule of bloggers visit livingwellwithepilepsy.com/epilepsy-blog-relay.

 

 

Foetal Anti - Convulsant Syndrome

Foetal Anti – Convulsant Syndrome

 

 

What is that you may be thinking ..

FACS can occur when anti-convulant Medication is taken during pregnancy. The medication crosses the Placenta and through to the developing Fetus.

FACSs refers to 3 different syndromes. These are –

  • Foetal Valproate Syndrome
  • Foetal Carbamazepine Syndrome
  • Foetal Hydantoin Syndrome

FACS can be diagnosed by a specialist when a mother to be is taking Anti – Epilepsy Medication during pregnancy.

The of type of drugs to think about are –

  • Epilim
  • Tegretol – Carbamazepine
  • Dilantin  – Phenytoin

Some of the possibilities are

  • Spina Bifida
  • Visual Difficulties
  • Lower IQ
  • Small size at birth
  • Attention and Memory problems
  • Slow Development

I have seen many questions about Medication and Epilepsy. It was interesting to hear this information. I have always thought the possibilities of these type of problems due to Epilepsy were pretty small. As I said, not all woman taking this type of medication will be affected, but sounds like they are a possibility.

I have often though that it wasn’t anything to worry about. I did think about this sort of thing when becoming a father. I was glad we didn’t have any problems getting pregnant. We have 2 healthy children.

People can be on these drugs for types for Medical issues other than Epilepsy, such as Mental Health.

For more information , take a look at the following website – FACSNZ

Top 13 Essential Vitamins and their Functions

Balanced and Healthy Diet

The main aspects to consider when selecting a healthy diet are portion control and balance. There is a saying “to eat the rainbow”. This comes from the fact that the more colourful fruits and vegetables are packed with vitamins. So should the diet consist of a wide variety of colourful veg and dark leafy green then almost all vitamins are supplied.

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When selecting portions, a handy guide is to use amounts you are familiar with. Such as a an amount of meat the same as the palm of your hand, 2 fistfuls of vegetables and a thumb sized piece of fat. This will ensure that you are getting enough food at each sitting to both satisfy your appetite and meet your nutritional requirements.

Most people can get enough vitamins by following that simple advice. However, old age, lifestyle habits such as smoking, and conditions such as pregnancy may require additional intake amounts. Therefore, it may be important to include the recommended supplements for health and vitality. Otherwise, following a diet plan is the only way to ensure that you are getting sufficient amounts of these essential vitamins.

Different Types of Essential Vitamins

There are 13 different types of essential vitamins required for normal body function. They are classified into two categories namely: Water-soluble and Fat-soluble vitamins.

  • Water-soluble- They include vitamins B1, B2, B3, B6, B12, C, Biotin, and Folate. They are not stored in huge amounts in the body and the excess is lost in urine. Aim to get a reasonable amount of these on a daily basis.
  • Fat-soluble- Fat-soluble vitamins include vitamins A, D, E, and K. They are stored in the body and, therefore, should be consumed in little amounts since extremes could cause health problems.

Functions, and Food Sources of Essential Vitamins

Vitamin A (Retinol)

Vitamin A has antioxidant properties which help improve immune health by maintaining healthy mucus membranes and fighting diseases. It helps build strong teeth and bones, prevents Alzheimer’s disease, heart diseases, arthritis, and age-related muscular degeneration problems. It also reduces wrinkles and fine lines associated with aging by rejuvenating the cells.

The dietary sources of Vitamin A include milk and dairy products such as yogurt, cheese, butter, eggs, fish liver oils, beef, kidney, chicken, leafy vegetables, pumpkins, carrots, sweet potatoes, and fruits like mangoes, peaches, winter squash, apricots, and cantaloupe.

RDA: Men: 900mcg Women: 700mcg

Vitamin B1 (Thiamine)

Vitamin B1 helps convert food into energy. It’s essential for healthy skin, hair, brain, heart, and for normal nerve functioning.

B1 helps prevent kidney stones, Beriberi, heart diseases, and indigestion. It’s especially crucial for elderly patients who are at a risk of Alzheimer’s.

Sources include pork chops, ham, liver, dried beans, nuts, and seeds.

RDA: Men: 1.2mg Women: 1.1mg

Vitamin B2 (Riboflavin)

This vitamin helps with energy production in the body by enabling conversion of food into energy. It also helps the body use other B vitamins properly. It’s needed for healthy eyes, hair, skin, blood, brain. It improves the body’s metabolic activity, boosts the immune system, and promotes the health of the nervous system.

Vitamin B2 comes from whole grains, dairy products, soybeans, meat and poultry, liver, eggs, and mushrooms.

RDA: Men: 1.3mg Women: 1.1mg

Vitamin B3 (Niacin, nicotinic acid)

This nutrient also helps convert food into energy and is important for the nervous system, digestive system, skin health, hair, and brain. It helps with indigestion, reduction of weakness, heart disorders, high blood pressure, high blood cholesterol, diabetes, skin disorders, migraines, and diarrhoea.

Niacin occurs naturally in foods and can also be made by the body from the amino acid tryptophan with the help of B6. It’s found in a wide variety of foods including meat, poultry, whole grains, mushrooms, potatoes, and peanut butter.

RDA: Men: 16mg Women: 14mg

Vitamin B7 (Biotin)

Biotin helps convert food into energy and synthesizes glucose. Also, it can help break down some fatty acids. It allows the body to use proteins, fats, and carbohydrates from the food consumed. Its helps improve metabolism and treats skin disorders.

It’s found in whole grains, non-fat milk and yogurt, sweet potatoes, peanuts, almonds, eggs, liver, poultry meat, organic meats, and fortified soy milk.

RDA: Men: 30mcg Women: 30mcg

Vitamin B6 (Pyridoxine)

It helps the body make good use of proteins and glycogen. It also helps form haemoglobin which carries blood in the body. It improves sleep, moods, and appetite. It also boosts the immune system. The only vitamin deficiency known to cause or worsen seizures in infants is a deficiency of vitamin B6. Some doctors may also try vitamin B6 in older children with difficult-to-control seizures, but there is no solid evidence that it will be helpful.

Most people do not get enough of this nutrient. It’s mainly found in foods such as meat, potatoes, bananas, poultry, liver, soybeans, lentils, nuts, bran, oats, chickpeas and sunflower seeds.

RDA: Men: 1.3mg Women: 1.3mg

Vitamin B12 (Cobalamin)

B12 helps improve body metabolism, synthesizes red blood cells and keeps the nervous system healthy. Deficiency can cause anaemia. The vitamin is only found in animal food sources such as meat, poultry, seafood, eggs, milk and other dairy products.

RDA: Men: 2.4mcg Women: 2.4mcg

Vitamin B5 (pantothenic acid)

It helps convert food into energy and also makes lipids and haemoglobin. Deficiency causes burning feet and neurological problems. It’s commonly found in whole grains, mushrooms, broccoli, tomatoes, avocado, and poultry.

RDA: Men: 5mg Women: 5mg

Folate (folic acid)

It’s vital for new cell creation. It helps prevent birth defects when taken during pregnancy, reduces heart and colon cancer risks and offsets breast cancer risks among women who consume alcohol.

It’s mainly found in asparagus, spinach, okra, broccoli, legumes like chickpeas and black-eyed peas, tomato juice, and orange juice.

RDA: Men: 400mcg Women: 400mcg

Vitamin C (ascorbic acid)

It’s generally an antioxidant that promotes healthy teeth and gums, improves the body’s ability to absorb iron, boosts the immune system and maintains healthy tissues. It’s abundant in citrus fruits, broccoli, potatoes, bell peppers, spinach, tomatoes, Brussel sprouts, and strawberries.

RDA: Men: 90mg Women: 75mg: Smokers: An additional 35mg

Vitamin D

Vitamin D is essential for good bone health as it increases the amount of calcium and phosphorus absorbed in the body, making bones and teeth stronger and healthier. It also helps protect against infections by boosting the immune system health. Dietary sources include milk, fish, eggs, organ meats fish liver oils, and rice beverages.

RDA: Men: 10mcg Women: 10mcg

Vitamin E

It helps maintain a healthy immune system and other body processes. It also acts as an antioxidant and protects cells from damage. It’s found in vegetable oils, leafy green vegetables, avocados, some nuts, sunflower seeds, peanut butter, and wheat germ.

RDA: Men: 15mg Women: 15mg

Vitamin K

This nutrient activates proteins and calcium essential for blood clotting and also helps prevent hip fractures. It can be found in liver, broccoli, spinach, sprouts, kale, eggs, collard, and other leafy green vegetables.

RDA: Men: 120mcg Women: 90mcg

Author Bio:

Alex Morgan – Currently studying in Dublin, Alex is a career writer, by choice! Versed in a number of subjects he mainly specialises in tech, education, health and fitness and gaming; of the video variety. He posts on a number of blogs and websites and harbours desires to begin a great novel, but struggles creating character names – Look for the epic fantasy “Tom the Barbarian” on shelves soon.

He can often be found on twitter under the handle @Al_Exical. He finds it comforting to talk about himself in the third person.

Brain Train

November !! An Exciting Epilepsy Month

Bring on November !!

We’ve got some Exciting Epilepsy things coming up in November. In a few days here in my home town,  we have The Brain Train. The Brain Train is an event to really learn the facts, ins and outs of Epilepsy. We have some exciting speakers coming like my past Neurologist . People will really be able to have their questions answered by simply putting their hand in the air. People really do need to learn the facts. There isn’t enough public knowledge of Epilepsy. It’s also an opportunity for people with Epilepsy to realise that they are not alone.

 

Brain Train

So, next……Our Car Boot Sale !!

The New Zealand Epilepsy Foundation Support Group – Waikato .This is our group/board here in my home town. On the 8th of November we are having a Car Boot Sale.  So, bring your Car or Ute along, pay a small fee and see if someone else is interested in a few things you no longer require. We’ll have the BBQ going, so it should be a productive morning. It’s exciting for us to get these events going. As we all know, actions speak louder than words.

 

Car Boot Sale

 

I am also taking part in a November Epilepsy Blog Relay .  Every day in November, someone will put forward a blog post around the subject of Epilepsy. There are a few subject within the subject of Epilepsy. My post will be about Genetics. Is someones Epilepsy Genetic ?  Or are they the only one in their family with Epilepsy. I know for myself I’m the only one with Epilepsy. I’m also the only one in my family not wearing glasses.  You never know what your gonna get.

 

Living Well With Epilepsy

 

It’s fantastic to be involved in all 3 of these activities. I love the feeling of being involved, working with others, making a contribution. Together everyone achieves more.

Medication

No More Topiramate !!

Medication

Yes, that’s right, no more Topiramate.

Tomorrow is my last day of Topiramate. I’ll then just be taking Levetiracetam and Lamotrigine. I have been in the process of cutting down to 2 drugs since my visit to the Neurologist in mid July. Each month I took 25 less. I was at 50 mg twice a day.

So, will this make a difference ? Who knows. I haven’t really been the best lately. At the end of last week, I had turns 4 days in a row. But it’s all emotional. What I mean by that is that most of the time I know why my turn happened, what brought it on. If we look at the year so far, I was better in the first half.

Here is my number of turns month by month.

  • January – 3
  • February – 3
  • March – 4
  • April – 4
  • May – 6
  • June – 6
  • July – 4
  • August – 6
  • September – 4
  • October ….so far – 5

So, has the small increase got anything to do with medication ?  I don’t think so. We’ll have to wait and see. I’m still keen on seeing a Hypnotist. I did speak to one a while ago. He said they weren’t allowed to see the likes of myself, that they could be held accountable for anything that happens. There is a Hypnotist that advertising that she can relieve stress, confidence…. all types of emotional stuff. I’ll think I’ll give her a call sometime.

Let’s see if no Topriamate makes a difference. I’ve been on it for a very long time !!

Embarassment

Embarrassment

Embarrassment

Embarrassment – a feeling of self-consciousness, shame, or awkwardness.

Are you someone who suffers from embarrassment ? ” Suffer” probably isn’t the most appropriate word to use. Maybe I should say feel Embarrassment.
This is something that I have gotten past. Epilepsy has played a part in this.

I no longer feel silly. I’m happy to laugh at myself. I’m sure you have been told that we need to laugh at ourselves. There is no need to feel embarrassment because of Epilepsy, so it’s a good idea to spread that into the rest of your life.

When it comes to Epilepsy I always think of the fact that Epilepsy can become part of ANYONE’S life. In some ways I’m actually proud of Epilepsy. I’d be happy if I never had another seizure, but I’m somewhat proud of where I am and where I want to be in the future. Yes, I have my bad days, but don’t we all ?

We can’t live our life’s trying to please everyone, so that’s why you have to forget what others think. I even think of not caring what others think. That may sound like a bad attitude to some, but I assure you it isn’t. Once again, I know where I am at. I know who I am. I’m 34 years old.

I often say I wish I understood how I would feel now when I was in my late teens. Those teenage years, many stress about the likes of homework. 20 years later you have your children to think about and the likes of paying a mortgage. What about retirement ? Once I reached 30 though, I realised that there was no need to be cool when I was at school. This is something I’m determined to get through to my children. It puzzles me that many people are friends through Facebook, but if you saw these people in the street, they wouldn’t even look at you. Why not ? Surely everyone has moved on from their school days.

Embarrassment

If people want to worry about how you look, what your wearing, let them.  Just don’t worry about it yourself.

“The rate at which a person can mature is directly proportional to the embarrassment he can tolerate.” – Douglas Engelbart

“Most things in life are moments of pleasure and a lifetime of embarrassment; photography is a moment of embarrassment and a lifetime of pleasure.” – Tony Benn

V Drink

Does V Drink = Seizures ?

How many out there with Epilepsy think about what they eat or drink ?
Do you really think what you eat or drink effects your seizures ?
I think it probably does, but what extremes do you want to go to.
Yes, I think we all know that Alcohol is something to keep away from.
I do keep away from Alcohol. I have the odd drink here and there, but it would only equal one drink a month…..if even that.

As we know, fruit , veges and water are the keys. The world is becoming more and more obese every day. Our household has veges at least every 2nd night.

In July and August, I had 4 turns ( seizures ) each month. But there is something that could be contributing to this. I have a drink of V once a week. I have being seeing this as my little treat. V is a drink that is very high in Sugar.

V contains –

Sucrose, Guarana, Caffeine, B Vitamins, Taurine   drinking V

It’s interesting to read up on these ingredients. We all know that everyone should be careful with their Caffeine intake. I have never been a coffee or tea drinker. I do have a milo / hot chocolate with my breakfast, but that’s pretty much it. I’m sure you know someone that has many cups of tea or coffee every day.

I have read that energy drinks can interact with medication, so this could be the case with myself. I have tried to go by the policy of moderation. Moderation is the key to everything. This is why I only ever have one V drink a week. I don’t like paying for them either, but we have to treat ourselves occasionally. I feel a bit guilty sometimes for spending the $3-4 dollars (NZ) the V costs. I usually buy 500 mls.

I haven’t had a V in about 10 days now. So, I’ll try and completely stop drinking them. We’ll see if this has any effect on things.

Life is so much about routines and habits. I think you can look at so many things like this. There are so many things that people start , then they can’t stop. This can be from smoking and drinking or even children needing their teddy bear in bed at night. Crazy comparison ? My wife says it is. I say that because there are times when our son has come in to us in the middle of the night because he can’t find his teddy. I think if children weren’t given soft toys when they are first born, they would be fine without them.

teddy-562960__180
I have already discussed drinking tea and coffee. I never started in my early or late teens, so I don’t do it now. It’s all about starting things. If you never start doing certain things, you won’t find yourself having to stop.

Sorry if you find a few things I said sound rather bizarre.

All the best
🙂

An Epilepsy Alphabet : Words Out Of Epilepsy

Here is something crazy. How many words can we get out of the word Epilepsy ? I’m pretty sure all of these make sense. But you shouldn’t really use someones second name, especially when that name isn’t of English Language. But hey, I just did it for a bit of a laugh and also my love of Golf !! I’ve watched Ernie a lot over the years.

Sleep

6 Letter Words

Yippee, Slippy, Sleepy

5 Letter Words

Peels,Sleep,Lippy,Piles,Pipes,Plies,Spiel,Slipe,Speel

4 Letter Words

Pees, Pile, Yelp, Pies, Pipe, Peal, Pips, Slip, Lies, Isle, Else, Eels

3 Letter Words                                                                                                    

Yes, See, Eel, Sly, Lip, Els,Yep,Yip, Eye, Spy, Sip, Pie, Pee, Pip, Lye, Ply, Lie

2 letter Words

Is

 

Eels


Not The Best Day

I didn’t have the best day yesterday. It was the usual start. My wife left at about 7:15 for her 20-30 minute drive to work. Its always about then that the kids are sitting at the table eating their breakfast. I always have to tell them to be quiet, carry on eating , etc. Every day is the same. It can be pretty frustrating. So, it was that sort of morning, plus I had quite a few other things running through my head.

So, at 7:30- 8 am , it’s always brush teeth time. It’s always about 8:30 that we leave for our walk to school and then kindy.  At about 7:30 or so, the doorbell went. I went and answered the door. There was a Courier Man there with a parcel for us. I then remembered that he was going to be coming. .  But, that is the last I can remember of him.

Next thing I remember is walking along the foot path in my slippers. I eventually ended up back at home. The front door had been pushed towards been shut, but not completely. I went in and there was no one there.

So, I gave my wife a call. She said she was on her way home.  She also told me the kids were just down the street at my sons friends house. Sounds like I had taken off and the Courier Man was unable to stop me. My son asked the Courier Man to take them to his friends house. Well Done !! So, I got on my way there. Just as I got onto the street, our Neighbour arrived. So, him and I walked to their house. There were my kids !!

So, we came home again. Next thing ya know, about 8:30, my wife was home again. I wish she hadn’t come home for the day. I’m sure my parents could have helped us out. So, from there, she took our girl to kindy , and my son and I walked to school, which is not even 5 minutes walk away.

I rang the Courier Company and found out who had made the delivery. They told me so I personally rang the man and told him how grateful we were that he took care of the kids by taking them down the street.

So, I had a day with my wife at home. After lunch we ( including our daughter) went to the local shopping centre to do a couple of things.

So, frustrating for me !! Frustrating because it meant my wife missed a day at work. It just makes you feel bad because you messed everything up.

I felt ok this morning, and I was really. I was a little funny when I left kindy though. (after dropping my daughter there). I stood on the footpath and wondered how long I had until I had to be back, or some reason I was thinking I didn’t want to go to far.  One of the teachers came out to see whether I was ok. I said to her that it seems like there is several periods throughout the day, like there was when I was at school. EG: 6 one hour periods. At first I was dreaming I had to be back in a short time. But, I came right and continued on my way home. Apart from that, which only lasted a few minutes I suppose  I’ve been fine today.