10 Weeks To Go !!

So, it was back to school and kindy today !!

I always look forward to the school holidays when we can have a week or so together. It’s much more fun than my wife leaving early like she does and then I taking the kids where they need to be. Pretty enjoyable holidays as usual.  The 2nd week always seems to go quicker than the first. Once the holidays have come to an end I’m kinda ready to carry on.

So, my daughter will be at school next year, so I’m very excited. It will be good no longer having the 10-15 minute walk to kindy. She still travels in the push- chair which she will do until she is finished there. We walk home after kindy. Next year it will be just down the street for both of them. School is only a few hundred metres away. Not even 5 minutes walk.

I’m often getting asked what I will be doing with myself, how I will full in my time. Not 100 % sure yet. My goal is to work from home. I’m slowly making progress with my online businesses. We’ll reaccess things at the end of the year.

Attraction Marketing System
 

My Epilepsy carries on. Looks like I have had about 7 episodes in the last month. That’s probably a bit of an increase. There was a stage I was having 2-3 a month, maybe 4. So, who knows why.

Most of these turns continue to be brought on by emotions. For example, yesterday we had friends for lunch. When they were about due to arrive, I heard a knock at the door. So, I went to open it…….But it turns out it was my son. He thought it was funny to pretend someone was there.  Our friends may have arrived pretty soon after that. I must have gone and had a sleep. When I came out I didn’t really have much to say. It took me a while to get back to myself.

There still isn’t much progress when it come to the NZ Epilepsy Foundation. I actually missed last months meeting, but I will be going to this months in a couple of days.

So, 10 more weeks of school…..

 

bryce rae

 

School Holidays

What do you think of the photo ? Not bad for a 7 year old !!

paralympics

The Paralympic Games… Just As Enjoyable

 

Have you been watching any of the Paralympics ? I have been watching a bit. New Zealand is doing very well, currently sixth overall for medals and first per capita .

Recently there was a discussion about whether the Paralympics get as much coverage , attention than the Olympics. NO, it certainly doesn’t, which is disappointing . It was suggested that it may be a good idea to have the Paralympics first. By the time the Olympics is over, many would be sick of sport. I guess that’s a possibility.

Many say that Brazil is pretty much broke with regards to the Olympics, which is understandable.

New Zealand swimmer Sophie Pascoe just won her 15th medal. This is her 3rd Paralympics.  15 medals, that’s pretty impressive. Many of the swimmers do very well, considering I have seen ones without hands, without arms.

Another Kiwi ( New Zealander ) that is doing well is Blade Runner Liam Malone. He has won gold medals in the 200 & 400 m and a silver in the 100m. In the process of this he has broken world records set by Oscar Pistorius. I would think Oscar Pistorius sports days are over….

Watching these people should be pretty inspiring for many. To see them do what they do, with the issues they have is amazing. I do believe that we should encourage our kids to win. But, if they don’t win it isn’t an issue. Competing is great on it’s own. Some of these people at the Paralympics would know that it’s most likely they don’t have a chance when it comes to winning, but they are still giving it a go. It would be very exciting to be representing your country.

So, lets hope the medals keep coming for New Zealand. I think they have about 17-18 as I write this . I think our record for these games is 24, which was in 1984.

So, lets hope the medals keep coming !!

 

 

Positive Attitudes About Aging

It’s kinda funny that everyone wants to live a long life but the idea of getting old doesn’t really appeal to anyone. It’s a bit contradictory don’t you think ?

Maybe we could say that life is like wine, it becomes better with age. But there are good things about all stages of life. I now think about my teenage years and think how sweet it really was. Back then it was stressful with things like school work and popularity. Some of these things I now realize are so silly.

I guess we can’t do much about aging. I do find it hard to believe that 40 isn’t that far away for myself ( I’m 35 ). It’s a bit scary, because it seems like I just left school. The last 15 years have really flown by. I used to think how I was only a third of the way through my years, but I guess I’m a bit further down the track now.

It’s up to each of us with some aspects of aging. There are some out there that look much older than they are. How do you feel about aging ? I read in a magazine that people that have a bad attitude towards aging have a slower walking speed and worse cognitive abilities than ones positive about aging. DO YOU BELIEVE THAT ?

walking

I do look forward to the years to come though. I love my children but I do think about them getting older. I’m not saying I wish they were turning 18 tomorrow. As they get older they come more independent. As I have said in recent posts, our youngest will be at school next year. I’m exciting for her and myself.

It’s often said that people don’t reach their best until their later years. That’s true in some instances. Think of the histories most successful people. I look forward to that myself. We also have the ones in their early twenties, maybe even late teens that have reached unbelievable success.

In today’s society, T.V , magazines and social media have altered the way we look at getting older. Well, social media is where it’s at because of young ones. Technology is what the world is all about. I recently watched on 60 minutes how dangerous technology is. That’s true. It’s exciting but also frightening. If we aren’t careful, many will end up unemployed. During the discussion of this on 60 minutes, they talked of a McDonald’s restaurant been run by robots. FREAKY !!

So, try to keep a positive attitude and look forward to what is yet to come !!

Todays Turn

Hey Hows it going ? I hope life is treating you well !!

Me ?  Well , things are as usual. My days pretty much consist of taking kids to school and Kindy and doing the chores around our home. I spend a bit of time in front of the computer as well. I have a few projects in progress.  Have you been enjoying the Olympics ? I wasn’t really that excited before  it all started but I have been enjoying it.

Today I had my 2nd turn this month which I suppose isn’t too bad.  My daughter and I were on the way to school to bring my son home. We are very lucky that it isn’t even 5 minutes walk away. I don’t think we realised how good it would be when we moved here a few years ago. I can’t wait until next year with both kids at school.

Anyway, back to my turn. We had pretty much got to school and my daughter saw a girl from her Kindy. They smiled at each other, kinda said hello. Both myself and the daughters mother noticed. Anyway, just as this happened, I felt a wee bit funny. As with 90 % ( maybe even more ) of my turns these days, I know it is happening. I think we wandered about school briefly. I must have been a bit out of it, a bit lost. But my son said I was at his classroom as usual, like I am everyday. I can’t remember that. I can’t remember the walk home either.

As I said, I know when most of my turns are going to happen. I think when I say to my wife that I feel like I’m going to have a turn, doing that scares it away. Sound a bit odd  ?

So, the rest of the afternoon wasn’t much fun.  I never really enjoy the afternoons  that much .  I got dinner ready and sorted out the days washing.   I always look forward to my wife getting home . The main thing that used to bore me was the thought of entertaining the kids in the afternoons. Maybe I worried about it to much. They pretty much entertain themselves these days.  They don’t sit and watch T.V in the afternoons. They do this in the morning though. It fills in the hour or so before it’s time to leave.

 

So, that’s today and things at the moment.

bryce rae

 

Come Out, Come Out …Wherever You Are !!!

That’s right, come out come out wherever you are !!!!

 

“Why” ? you may ask. Because people with Epilepsy can achieve alot more together. There are other people with Epilepsy out there. How much of a group do you have in our area, town , city ?

This is something we really struggle with. Let’s do the Maths. Here in Hamilton, we have a population of 150,000. Let’s say 1% of them have Epilepsy in their life. That’s 1500 people !!!!! That’s alot of people. Let’s scale it down. What about 1000 people, or even 500. Those are big numbers. Surely some of those people would like to be part of something. Think of it as a club, community, group…whatever you want to call it. We all have something in common. Yes, it’s something we would rather be without, but why not try and make the best of it.

There are many ways we make friends. Maybe you met your friends through education, such as University or School. Maybe you worked together. Maybe you played sport together. We make friends through our children as well. We have made some of our best friends through starting a family !!!

Forget about embarrassment. There is nothing to be embarrassed about. There are others out there with Epilepsy. That’s why it makes so much sense not to be embarrassed. I’m proud to say I don’t feel embarrassment about anything really. Perhaps this is because of my Epilepsy.I think it has made me stronger in a way. Yes, I like to be my best and make a good impression. We should always try and be our best. But, I try not to sweat the small stuff. I don’t care what others think of me. People out there don’t know your story, don’t know what you are doing with your life.

Remember your younger years ? Did you get called silly names ? Did you want to be one of the cool kids ? When we get older we realize how silly all of that was. If only I could have known what I know now 20 years ago.

We have made some ground here in New Zealand… we are slowly getting some events for people with Epilepsy in place. We still have a long way to go, but it is very encouraging. I’m very proud and excited to be part of it.

So please …..come out, come out wherever you are  !!!!

DSC08076

 Do you like my t-shirt ?

I’m not afraid to wear it out !!!seize the day

Not the best of days…

Today has been one of those days. You know , right ?
What I mean is a day when things aren’t much fun, you look forward to when the day is over. I felt a bit frustrated this morning. The usual bit of silliness that happens when the kids are having breakfast. My wife leaves just after 7 in the mornings, so it’s just me when the kids are eating. I often tell them to stop mucking around and eat their breakfast. They complain that the other is looking at them !! CRAZY KIDS !!!

Continue reading “Not the best of days…”

My Easter Weekend

Hello There,

If you just celebrated Easter, was it a good one ?
We had a pretty good one here. The way things worked out , we got to have a 5 day weekend here in New Zealand. So, we decided to go away to my in-laws. There were other things to celebrate beside Easter as well. We had a 60th birthday and 40th wedding aniversary.

It ended up been a longer drive than usual, about 6 hours. There was a couple of times we were stationary. This was due to car crashes and slips/ erosion in the Waioeka Gorge.

 

sfesssssssssssssssssssssssssssssss

We got there eventually though. It was an enjoyable weekend as usual, but it wasn’t the best in terms of my Epilepsy. I had about 4-5 seizures / turns. One of those was a bit different to what I normally have. I guess you could call it a Grand Mal or Tonic Clonic, whatever term you use.Sounds like I made a few funny noises, ended up in a funny position and let out alot of sweat.Perhaps I gave everyone a bit of a fright.It’s not the usual way I do things.

Despite the Epilepsy, we kept pretty busy and had a good weekend. There is no time like family time. The trip home was the same, a pretty slow one. It’s always good to get back to your own bed though.

We decided it would be a good idea to get a blood test to see if everything was ok with my pills, etc. So, today I had to take my boy to the doctor. I organised a blood test which we’ll do tomorrow. That has to be done before the morning pills, so the levels aren’t to high.

So, I guess that’s that !!

 

ALERT , ALERT !!! Medic Alert

 

 

http://www.positiveepilepsy.com

 

So, Medic Alert ….

Medic Alert is a way your information is kept about your health issue. You wear a wristband / bracelet or something around your neck. On there is what health issue you have, plus a pin number. Do you have something like this where ever you live in this big wide world ?

So say something happens and you end up in the arms of Medical staff, they can look at Medic Alert and see why whatever happened may have happened. Perhaps they will discover there are some drugs you can’t take. I know a few people that wear Medic Alert for this reason. Of course, mine is for my Epilepsy. One thing we haven’t done is kept my info up to date. I should go through my doctor and get things signed off. This would be what medication I take, etc. My medication has changed many times over the years.

I  always wear mine around my neck. I have worn a wrist band a few times, but it annoys me a bit. I guess it is something you’d get used to.

I recently received an email from Medic Alert. They were asking me to fill in a survey about my experiences . The main question was whether I had had any experience of medical staff missing my Medic Alert / not taking notice of it. This has happened to me several times.

I had a seizure ( turn) one day when I was picking my son up from school. Even though I probably would have been fine, some thought I was having a heart attack. So, the Ambulance arrived. Did they see my Medic Alert around my neck ? NO !! Don’t you think they should have looked for it ?

So from the look of the survey, it sounds like there has been other people go through this. We pay a yearly fee for my family to be covered for Emergency services like this. I think we pay about $90 a year.  Without this , it would pretty much cost that for using their services just once. So it’s good it covers all 4 of us.

Our Ambulance service comes from St John . They rely heavily on donations/ fundraising  from the public. Perhaps the government could assist them a bit more.

 

ambo

Living Life With Epilepsy

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This post is part of the Epilepsy Blog Relay™, which will run from March 1 through March 31. Follow along and add comments to posts that inspire you!

 

Most people with Epilepsy have an everyday life pretty much the same as everyone else. Well, that should be the goal. Epilepsy isn’t the same for everyone. There are a few things to think about, such as how often one has seizures and what sort of seizures they have. Epilepsy can limit some parts of life. For example, some with Epilepsy are unable to drive. There is normally a stand down period if one has a seizure such as 12 months. Others need to think about what their life would be without a license. Not been able to drive for 1 month, 6 months, 12 months. How would you handle this ?  Some with Epilepsy have NEVER had a drivers license. Employment can be another issue. It’s really about finding an understanding employer.

There could be problems with bullying & teasing. Maybe some will be excluded from groups. But, what one with Epilepsy needs to remember is that ANYONE CAN DEVELOP EPILEPSY AT ANY TIME. If one move away from someone who develops Epilepsy, then perhaps they aren’t the sort of person to be spending time with.

Parents need to continue to be positive. Communication is the key. As with anything, it’s good to talk. Talk about anything including Epilepsy.Supportive family and friends are essential. . Yes, everyone should be aware of ones Epilepsy and we all need to be taken care of when required. But, this can go to far. NO ONE SHOULD BE PUT IN COTTON WOOL.

                                     

 

thumbs upAttitude… Does one have a good attitude ?

Thinking positively is the key !!

 

 

 

One should always provide the likes of school /social groups with information. What type of Epilepsy and how often seizures occur ?  What they should do if a seizure occurs. The public generally have very little understanding of Epilepsy. If not informed, it’s possible a seizure could be misinterpreted.

One with Epilepsy should try and interact with others who have Epilepsy. This shows them that there are others out there with Epilepsy.They are not alone .This can sometimes be difficult. Some with Epilepsy like to keep their Epilepsy a secret. They need to understand there is nothing to be ashamed of.

They are not alone !!

 

NEXT UP: Be sure to check out sonyasstory.com  for more on Epilepsy Awareness.

For the full schedule of bloggers visit livingwellwithepilepsy.com/epilepsy-blog-relay.

Be sure to check out the Epilepsy Blog Relay Thunderclap to raise epilepsy awareness. And don’t miss your chance to connect with bloggers on the #LivingWellChat on March 31 at 7PM ET.

Dad’s , Children and Restrooms

 

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Today I read an article about a Dad who rushed into the rest room  to change his child’s nappy /diaper. When he got there he saw there  was no changing table.
Have a read of this article –

Dad Pushes for a Changing Table in Every Men’s Bathroom

This is something I have often thought of. When it comes to children, most things are directed towards mothers. This is understandable, but I feel it’s unacceptable.
I have had thoughts the same way as this article. In some places there is a changing room. I have never used one with any of my children, but have always wondered if some woman would react if the likes of myself walked in . Would they think of covering a daughter up ? I would be there for one reason and one reason only. To take
care of my child.
I have a mall /shopping centre down the road, about a 20 minute walk. For a long time they had “Mummy’s Morning ” on a Friday morning. I have a feeling they may have changed it to “Parents Morning. ” So they should !!
I attended a play and music group with both my children. It was a great time and we made some fantastic friends there. The couple that ran most of it were so lovely. I often talk of them as my children’s ” 3rd  grandparents ” .
When we moved to our current home, nearly 3 years ago, I went to a new music group. The woman who ran it made suggestions I was there because of the mothers / woman. That really offended me. I’m happily married. I only ended up going a few times.  When my son was born , we enrolled in “Growing Up In New Zealand “. This is all about how children in New Zealand are growing up. This will continue until he is at least 18. So, they have visited and asked questions and we also receive  questionnaires by mail. There are questions set out for me and also for my wife. Most of the questions are directed towards her, since she is his mother.
I often feel people look at Dad’s at home as lazy . This doesn’t bother me. Why is a Stay At Home Dad different to a Mother at home ? They don’t know why my wife and I work like we do. It’s no one else’s business but ours. They don’t know about my goals for the future.
With today’s economy  there are many families where both parents attend a day job. I think the number of Stay At Home Dads is increasing all the time.

THAT’S GREAT !!!

Genetics

Epilepsy Blog Relay : Will My Children Have Epilepsy ?

 

This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you!

Genetics

 

Many people around the world are wondering if Epilepsy is genetic.  Here we’re going to discuss this in detail.  It’s not uncommon for people to be curious about this during their child rearing years.  The last thing a potential parent wants to do is pass on their health issue to their offspring.  We’ll also discuss the likelihood of doing just that.  Understanding the facts goes a long way in helping to uncover the myths surrounding this condition.

Epilepsy can be passed down from generation to generation.  That doesn’t mean a person’s children are guaranteed to have it.  It simply means that their likelihood of having Epilepsy increases.  This is true if the father of the child has Epilepsy.  It should be noted that if the mother has Epilepsy, the likelihood of the child having Epilepsy is slightly higher. A woman should question the medicated she is taking, whether there is a chance of that effecting her baby. I have recently learned about Foetal Anti -Convulsant Syndrome. FACS occurs when an anti-convulsant drug, such as Epilim, is taken by a mother during pregnancy.  It crosses the placenta and through the developing fetus. But, once again, not all woman on these medications will have a child effected by FACS.

I don’t think Epilepsy should prevent  a couple from considering starting a family. But, everyone’s case is different and health professionals can give advice.  It should also be noted that a sibling is at higher risk of Epilepsy if their brother or sister has it.  With this said, the risk is still fairly low.  While it’s definitely higher than in the general population, the risk is minimal and shouldn’t stop anyone from considering expanding their family.

You should also note that Epilepsy is not contagious.   You can’t pass on Epilepsy through a hug or a cough.   No one should ever be concerned about contracting Epilepsy from someone else.  It simply isn’t possible and any concern is based on irrational thoughts.

Epilepsy can also be caused by brain trauma.  If this is the cause of Epilepsy, then it’s not genetic and therefore can’t be passed on.  This is a common form of Epilepsy. Any traumatic head injury can be the catalyst for Epilepsy.   Those who repeatedly have their head hit are at higher risk of developing Epilepsy. Head protection when riding a bike, or playing some sports is a must.

Never lose sight of the fact that Epilepsy and seizures can be treated.  While this is a serious condition, millions of people around the world live productive lives with it.  Always make sure to take your medication as prescribed.  A close relationship with your doctor is a must when having this condition.  It’s the best way to make sure that it’s under control.  You’ll also be able to bring up any concerns you may have in regards to passing it on to your children.

I have a 6 year old son and a four year old daughter. Being a Stay At Home Dad, I am responsible for them most of the time. We have now reached a stage where my son understands my Epilepsy and knows what steps to take if I have a complex partial seizure.

I developed my Epilepsy during Puberty. No one in my family has Epilepsy. All tests ( MRI & EEG ) I have ever had have never shown any reason for it, so I wonder why. We all wish for the best health for our family. I do think of my children developing Epilepsy. Lets hope for the best.

NEXT UP: Be sure to check out tomorrow’s post at  http://www.gotchababe2015.co.uk/ for more on Epilepsy Awareness. For the full schedule of bloggers visit livingwellwithepilepsy.com/epilepsy-blog-relay.

 

 

Foetal Anti - Convulsant Syndrome

Foetal Anti – Convulsant Syndrome

 

 

What is that you may be thinking ..

FACS can occur when anti-convulant Medication is taken during pregnancy. The medication crosses the Placenta and through to the developing Fetus.

FACSs refers to 3 different syndromes. These are –

  • Foetal Valproate Syndrome
  • Foetal Carbamazepine Syndrome
  • Foetal Hydantoin Syndrome

FACS can be diagnosed by a specialist when a mother to be is taking Anti – Epilepsy Medication during pregnancy.

The of type of drugs to think about are –

  • Epilim
  • Tegretol – Carbamazepine
  • Dilantin  – Phenytoin

Some of the possibilities are

  • Spina Bifida
  • Visual Difficulties
  • Lower IQ
  • Small size at birth
  • Attention and Memory problems
  • Slow Development

I have seen many questions about Medication and Epilepsy. It was interesting to hear this information. I have always thought the possibilities of these type of problems due to Epilepsy were pretty small. As I said, not all woman taking this type of medication will be affected, but sounds like they are a possibility.

I have often though that it wasn’t anything to worry about. I did think about this sort of thing when becoming a father. I was glad we didn’t have any problems getting pregnant. We have 2 healthy children.

People can be on these drugs for types for Medical issues other than Epilepsy, such as Mental Health.

For more information , take a look at the following website – FACSNZ

Breast Cancer

October is Breast Cancer Awareness Month

Breast Cancer

The National Breast Cancer Foundation reports that each year an estimated 220,000 women in the U.S. are diagnosed with breast cancer and more than 40,000 die. While the number of breast cancer related deaths have decreased in the past 20 years, the number of women diagnosed remains high. One in eight will be diagnosed with breast cancer in their lifetime and it continues to be the second leading cause of death among women. While there is still no cure for cancer, awareness and early detection prove to be helpful in increasing the likelihood of extending life and even survival.

Educate, Inform, & Inspire

October marks Breast Cancer Awareness Month and all women, young and old, should know how to perform self exams, a helpful tool in early detection. Additionally, women can help by educating other women in their lives, such as family, friends, and co-workers, on the benefits of early breast cancer detection. While self exams should be performed regularly and year round, take the time this October to inspire and educate those around you.

Who is Most at Risk?

Unfortunately, breast cancer is not preventable and some women are prone to developing it over others. However, there are lifestyle habits (or changes) that can help you reduce the risk of developing breast cancer. Remember, whether you are in your 20’s or in your 70’s, it’s never too late to change your lifestyle. According to the Mayo Health Clinic, here are some ways to reduce your risk of breast cancer:

  • Limit alcohol consumption and don’t smoke tobacco
  • Lose weight, maintain a healthy weight, and stay physically active
  • Breast feed your infants
  • Limit your duration of hormone therapy
  • Avoid environmental pollution and radiation

While lifestyle habits can greatly affect your chances of developing breast cancer, your chance may be linked to your genes. Risk factors may vary from woman to woman, but self-exams and mammograms can be integral detection tools.

Breast Self-Exam

Breast self-exams are a self-checkup that women do in the comfort of their own homes. Although it’s not completely accurate, it is free and can help to save a woman’s life. Many women struggle with being comfortable performing a self-exam, but with regularity women should be able to notice changes and report them to her doctor. A breast self-exam is easy to do, but should not be compared to anyone else’s as all breasts are different. One woman may have normal “lumpy” breast tissue while another may have none. If you are hesitant to “get to know your breasts” talk with your doctor or with a friend; it’s time to take charge of your health.

Mammogram

Self-exams are also important because your breasts could change a lot between annual checkups and the time your reach the age of mammograms. Many older women talk about the “dreaded” mammogram, but it’s an important tool in detecting any changes within the breast that could indicate breast cancer. Mammograms are scheduled for women who are over the age of 40.

Another great way to monitor your breast health and reduce your risk of dying from breast cancer is have a honest and open discussion with your doctor.

Matt Rhoney is an avid reader on trending topics and a writer in his spare time. On the beautiful coast of North Carolina you will usually find him catching up on the latest news with locals or on the beach surfing, kayaking or paddle boarding. He loves to write pieces on health, fitness, and wellness, but often writes about families and safety.

Mount Everest

My Everest Walk !!

 

 

So, back to School and Kindy for everyone tomorrow. It’s been a very busy couple of weeks, probably the busiest holidays we have ever had. We saw alot of people. We spent a few nights away with my in-laws and parents. While we were away I did part of the Everest Walk !! Puzzled ?

A view out towards Young Nicks Head

Kaiti Hill

 

 

It was called the  Kaiti Hill Challenge. Kaiti Hill is 130m high, so 68 climbs or walks gets you all the way to the top of Mt Everest (8840m).  This distance had to be done between the 13th of September and the 31st of October. I don’t really think you can put it on the same scale, but it’s a great theme for a walk. It got alot of people involved, including my mother-in-law. She is always a keen walker.

It was pretty impressive the number of people walking up the hill. Walking up and down took about 30-40 mins, so we did this twice two days in a row.  When you get to the top of Kaiti Hill, you have a pretty good view. You can see all of Gisborne, plus Young Nicks Head.    This is the spot that 12 year old Nicolas Young first saw in 1769 when aboard Captain Cook’s Endeavour.

The Endeavour
Captain Cook’s Endeavour

A couple of days ago, my mother-in- law sent me a text saying she had completed her Everest Walk. Sounds like she got up to 6 walks one day. That’s a bit of walking, and walking the same track over and over again.

So, holidays are always good holidays, but by the end of things I’m always ready for the end of things. The good thing this time of year is that it’s only one  more school term and we have the end of year. Sorry to sound negative, but I don’t really enjoy thinking about Christmas. I sometimes think it would be nice to go to bed about the 23rd of December, then wake up about the 5th of January.

I’ve just had a funny week when it comes to my Epilepsy. A week ago, I went a bit down the road and joined a fitness group. I told the Instructor about my Epilepsy, then about half an hour in had a turn. I felt it coming on. Things looked different. The Instructor was very helpful. She made sure I was ok to walk home. She even sent a Facebook message that evening. I have had turns the last 3 days as well. They have all had a reason, and all been very short. The reasons have being watching my son spill his cereal. It stressed me out watching him try and carry his place-mat and bowl at the same time. I knew something was going to spill. This led to my turn. The next day my kids were riding their bikes outside and my son called us out because my daughter was having problems on her bike.  Then, yesterday …. After dinner, my son asked if there was any pudding. “No”, I said. He didn’t like the sound of that, so more conversation eventuated. Then a very quick turn arrived.                                                                                                    So, as you can see, just little things that brought a bit of stress. It’s Sunday again, so I’ll be going to the fitness group again. Here’s hoping things will be ok.

All the best,

Bryce 🙂

 

Helping Your Teenager Stay Active and Healthy with Cancer

by Matt Rhoney

The long journey from being diagnosed with cancer and going through the treatments is a life altering one. For a teenager who has been used to physical activity and boundless energy, the experience is one that can be filled with frustrating moments. If your teenager is recovering from cancer, physical activity and exercise in moderation can help speed up that recovery. The level and rate of activity will not be like during the pre-cancer days, but it should not be ruled out completely. Here are a few tips on keeping your teen healthy and active while undergoing cancer treatment.

Healthy Exercises for Cancer Patients

Several studies have found that regular exercise and physical activity helps cancer patients in fighting the cancer, and also helps to keep it away once they are healed. There is no doubt that rest is important and necessary however, research shows that if you are able to incorporate some form of regular physical activity that can be largely beneficial both to health and spirit.

Too much rest and very little exercise works against the body because it weakens the muscles and can lead to unhealthy weight gain or increased feelings of fatigue.  Your child’s exercise routine should not be too strenuous so that they do not use up all their strength. Get the doctor and cancer team involved in planning physical activities that can be safe for your particular case. Exercise during and after treatment should be incorporated in a safe and responsible way, along with activities your teen already enjoys. Cancer should not be allowed to erode your child’s quality of life.

Paying Attention to a Healthy Diet

Diet is a major part of cancer treatment and is important to help fight the disease, and also to maintain the health of the patient. Nutrition is one of the major weapons to be used in this battle. However, one of the effects of cancer treatments is loss of appetite and weight loss. It is important to try to maintain a healthy weight during the treatment phase. Modern cancer care includes nutrition therapy that explains how to eat healthy. Encourage your teen to embrace healthy eating habits so that their body is in the right state to fight cancer.

Maintaining a Healthy Lifestyle

It is crucial to maintain a healthy lifestyle. If your teen lived a sedentary lifestyle before being diagnosed with cancer, now is the best time to change that. Focus should also be on healthier eating habits. Here are a few general recommendations from the Mayo Clinic:

  • Exercise regularly, but start slowly.
  • Eat more vegetables and fruits – at least 2.5 cups of fruit and vegetables daily.
  • Choose healthy fats.
  • Eat healthy carbohydrates such as whole grains, legumes and fruit.
  • Maintain a healthy body weight.
  • Cut down on alcohol.
  • Quit smoking.

Although cancer is more common that we would like, it is possible to beat cancer. There are many survivors who can testify to that fact. Adopting a healthier lifestyle can give you the ammunition you need to fight one of the greatest battles of your life. Encourage your teenager to make these lifestyle changes. Most importantly, always stay positive and keep your spirits high, regardless of the circumstances.

Are you or your teen battling cancer? What tips can you share for staying healthy and active pre and post treatment?

Matt Rhoney is an avid reader on trending topics and a writer in his spare time. On the beautiful coast of North Carolina you will usually find him catching up on the latest news with locals or on the beach surfing, kayaking or paddle boarding. He loves to write pieces on health, fitness, and wellness, but often writes about families and safety.

It’s That Time Again

Yes, it’s that time again !!

What time ? This week is the last week of the 3rd school term. So, here comes 2 weeks Holiday for our boy, and a week or so away from School for my wife ( she’s a teacher ) . Our girl normally just has one week off Kindy when the School Holidays are with us, but these holidays she’ll have both off.

So, as we do in alot of holidays, we’ll go to Gisborne and stay with my in-laws for a few nights. Might say with my parents at their beach house on the way home as well. Family is very important, and it’s fantastic for Grandparents and Great-Grandparents to spend time with the kids. My parents are lucky in that respect. They are only 15-20 minutes away and we see them at least once a week.

Beach

I always look forward to the school holidays because it means I’m not at home alone with the kids. I’m lucky in the respect that my wife is a teacher and she gets that week or so away. But please don’t say to me that teachers get alot of time off work though. They put in big hours during the school term and time at school is required during the holidays. It’s not a 9 am-3 pm  job as many think it is.

My Epilepsy hasn’t been to bad lately, maybe slightly on the improve. So far this month I have had 3 turns. ( Complex Partial Seizures ) . Lets hope I can get to the end of the month without anymore. I’m currently in the process of ending taking Topiramate. They will be completely gone on the 20th of October. That will leave me on Lamotrigine & Levetiracetam.

Medication

Our daylight savings start this weekend . Bring on the summer. It’s slowly getting that tiny bit warmer. As I write it’s raining…. I’ll get wet when a go and get my daughter from Kindy in a wee while. Summer seems to get later and later every year.

Time certainly does fly. It seems like just yesterday it was last Christmas. Before you know it, it will be Christmas once again. There are good and bad parts to this. I do look forward to my daughter turning 5. ( Dec 2016 )  Alot of parents find this upsetting. Maybe I will when it actually happens. I have never been able to drive, so most of my days are at home, just the kids and I. A friend of ours, who’s son just turned 12 , said that it is frightening that his son is now 12. In a few more years, say 6, his son may be off on his own path. I fully understand where he is coming from. I also think of our parents getting older, like we all do. We can’t be here forever.

All the best,

Bryce ox

Embarassment

Embarrassment

Embarrassment

Embarrassment – a feeling of self-consciousness, shame, or awkwardness.

Are you someone who suffers from embarrassment ? ” Suffer” probably isn’t the most appropriate word to use. Maybe I should say feel Embarrassment.
This is something that I have gotten past. Epilepsy has played a part in this.

I no longer feel silly. I’m happy to laugh at myself. I’m sure you have been told that we need to laugh at ourselves. There is no need to feel embarrassment because of Epilepsy, so it’s a good idea to spread that into the rest of your life.

When it comes to Epilepsy I always think of the fact that Epilepsy can become part of ANYONE’S life. In some ways I’m actually proud of Epilepsy. I’d be happy if I never had another seizure, but I’m somewhat proud of where I am and where I want to be in the future. Yes, I have my bad days, but don’t we all ?

We can’t live our life’s trying to please everyone, so that’s why you have to forget what others think. I even think of not caring what others think. That may sound like a bad attitude to some, but I assure you it isn’t. Once again, I know where I am at. I know who I am. I’m 34 years old.

I often say I wish I understood how I would feel now when I was in my late teens. Those teenage years, many stress about the likes of homework. 20 years later you have your children to think about and the likes of paying a mortgage. What about retirement ? Once I reached 30 though, I realised that there was no need to be cool when I was at school. This is something I’m determined to get through to my children. It puzzles me that many people are friends through Facebook, but if you saw these people in the street, they wouldn’t even look at you. Why not ? Surely everyone has moved on from their school days.

Embarrassment

If people want to worry about how you look, what your wearing, let them.  Just don’t worry about it yourself.

“The rate at which a person can mature is directly proportional to the embarrassment he can tolerate.” – Douglas Engelbart

“Most things in life are moments of pleasure and a lifetime of embarrassment; photography is a moment of embarrassment and a lifetime of pleasure.” – Tony Benn

I’ll Pack A Lunch ( Alpaca)

On The Bus

Today my daughter and I had a bit of a different Friday. Our Fridays are normally away from kindy, but we went on a kindy trip today. The trip was to an Alpaca Farm. Do you know what an Alpaca is ?

Part of the fun was the bus ride. Sound a bit weird. My girl and I have probably never been on a bus without her being in the pushchair….maybe once.
The Alpaca’s were a good time. They are a different sort of animal . Not as common as the sheep or cow.
All the kids got to feed the Alpaca’s. There were some real friendly ones. The kids also got to stomp in the mud  !!! Always a good time, right ?
So, a fun day out !!
It’s nice to be sitting here in my P.J’s on a Friday night – 7:30 pm 🙂
That’s always a good time. We’ve got the weekend ahead of us.

All the best

oxox

Feeding

An Epilepsy Alphabet : Words Out Of Epilepsy

Here is something crazy. How many words can we get out of the word Epilepsy ? I’m pretty sure all of these make sense. But you shouldn’t really use someones second name, especially when that name isn’t of English Language. But hey, I just did it for a bit of a laugh and also my love of Golf !! I’ve watched Ernie a lot over the years.

Sleep

6 Letter Words

Yippee, Slippy, Sleepy

5 Letter Words

Peels,Sleep,Lippy,Piles,Pipes,Plies,Spiel,Slipe,Speel

4 Letter Words

Pees, Pile, Yelp, Pies, Pipe, Peal, Pips, Slip, Lies, Isle, Else, Eels

3 Letter Words                                                                                                    

Yes, See, Eel, Sly, Lip, Els,Yep,Yip, Eye, Spy, Sip, Pie, Pee, Pip, Lye, Ply, Lie

2 letter Words

Is

 

Eels


If You Keep Losing Sleep Your Gonna Be……

 

My daughter is currently asleep on the couch. She has been for about the last hour and a half. She doesn’t really sleep much during the day anymore.

Every creature on earth needs a rest, whether that rest is during the day or during the night. We all sleep. We need to eat and we need to sleep. To much attention is put towards our diets and sleeping isn’t talked about enough.

Sleeping gives your body a rest. This prepares it for the next day. After a day, your mind and body need a holiday. Your brain needs to sort things out. Without it, your brain will mess things up.
Maybe sleeping is when our brain sorts out all the information, solves all the problems.Perhaps all the scientific stuff is done as we sleep.

As we know the amount of sleep a person needs depends on age.
Babies need a lot. About 14-15 hours a day. But once we each adulthood
we can get by on 7-8 hours of sleep.

Kids between 5 and 12 ages need somewhere between 10-11 hours sleep.
I enjoy this at the moment. Our two children ( 3 & 6 yrs ) go to bed about 7 pm every night, which equals about 12 hours. So, what do I enjoy ? That time when we are child free. Sound Cruel ? It’s just nice to relax without the kids.

Does missing a nights sleep make you grumpy ?
50% of the time I fall asleep in front of the TV. If you were to miss 2 nights, you would start to have real problems. As mentioned earlier, your brain and body need sleep to function. I don’t know how anyone would cope with no sleep at all over 48 hours.

Eventually it will become impossible for the brain to function, to send those messages to the rest of your body.

I think a lot of things in life are about habits. Good habits, bad habits. There are many things we do every day. Like eating our meals, brushing our teeth. Sleep is very much a habit. You can be in a good or bad habit with your sleep. I sometimes get into bad habits with my sleep by getting up at 2-3 am and watching TV for an hour or 2, then getting up early. But, if I go to bed at a good time, like 9-10 pm and read for a while, I can spend the whole night there. If I have to visit the toilet during the night, I sometimes have temptations not to go back to bed.

RESIST TEMPTATIONS !!!

 

 

Silverchair – If You Keep Losing Sleep