So, it was back to school and kindy today !!
I always look forward to the school holidays when we can have a week or so together. It’s much more fun than my wife leaving early like she does and then I taking the kids where they need to be. Pretty enjoyable holidays as usual. The 2nd week always seems to go quicker than the first. Once the holidays have come to an end I’m kinda ready to carry on.
So, my daughter will be at school next year, so I’m very excited. It will be good no longer having the 10-15 minute walk to kindy. She still travels in the push- chair which she will do until she is finished there. We walk home after kindy. Next year it will be just down the street for both of them. School is only a few hundred metres away. Not even 5 minutes walk.
I’m often getting asked what I will be doing with myself, how I will full in my time. Not 100 % sure yet. My goal is to work from home. I’m slowly making progress with my online businesses. We’ll reaccess things at the end of the year.
My Epilepsy carries on. Looks like I have had about 7 episodes in the last month. That’s probably a bit of an increase. There was a stage I was having 2-3 a month, maybe 4. So, who knows why.
Most of these turns continue to be brought on by emotions. For example, yesterday we had friends for lunch. When they were about due to arrive, I heard a knock at the door. So, I went to open it…….But it turns out it was my son. He thought it was funny to pretend someone was there. Our friends may have arrived pretty soon after that. I must have gone and had a sleep. When I came out I didn’t really have much to say. It took me a while to get back to myself.
There still isn’t much progress when it come to the NZ Epilepsy Foundation. I actually missed last months meeting, but I will be going to this months in a couple of days.
So, 10 more weeks of school…..
What do you think of the photo ? Not bad for a 7 year old !!
That’s right, come out come out wherever you are !!!!
“Why” ? you may ask. Because people with Epilepsy can achieve alot more together. There are other people with Epilepsy out there. How much of a group do you have in our area, town , city ?
This is something we really struggle with. Let’s do the Maths. Here in Hamilton, we have a population of 150,000. Let’s say 1% of them have Epilepsy in their life. That’s 1500 people !!!!! That’s alot of people. Let’s scale it down. What about 1000 people, or even 500. Those are big numbers. Surely some of those people would like to be part of something. Think of it as a club, community, group…whatever you want to call it. We all have something in common. Yes, it’s something we would rather be without, but why not try and make the best of it.
There are many ways we make friends. Maybe you met your friends through education, such as University or School. Maybe you worked together. Maybe you played sport together. We make friends through our children as well. We have made some of our best friends through starting a family !!!
Forget about embarrassment. There is nothing to be embarrassed about. There are others out there with Epilepsy. That’s why it makes so much sense not to be embarrassed. I’m proud to say I don’t feel embarrassment about anything really. Perhaps this is because of my Epilepsy.I think it has made me stronger in a way. Yes, I like to be my best and make a good impression. We should always try and be our best. But, I try not to sweat the small stuff. I don’t care what others think of me. People out there don’t know your story, don’t know what you are doing with your life.
Remember your younger years ? Did you get called silly names ? Did you want to be one of the cool kids ? When we get older we realize how silly all of that was. If only I could have known what I know now 20 years ago.
We have made some ground here in New Zealand… we are slowly getting some events for people with Epilepsy in place. We still have a long way to go, but it is very encouraging. I’m very proud and excited to be part of it.
So please …..come out, come out wherever you are !!!!
Do you like my t-shirt ?
I’m not afraid to wear it out !!!