Come Out, Come Out …Wherever You Are !!!

That’s right, come out come out wherever you are !!!!

 

“Why” ? you may ask. Because people with Epilepsy can achieve alot more together. There are other people with Epilepsy out there. How much of a group do you have in our area, town , city ?

This is something we really struggle with. Let’s do the Maths. Here in Hamilton, we have a population of 150,000. Let’s say 1% of them have Epilepsy in their life. That’s 1500 people !!!!! That’s alot of people. Let’s scale it down. What about 1000 people, or even 500. Those are big numbers. Surely some of those people would like to be part of something. Think of it as a club, community, group…whatever you want to call it. We all have something in common. Yes, it’s something we would rather be without, but why not try and make the best of it.

There are many ways we make friends. Maybe you met your friends through education, such as University or School. Maybe you worked together. Maybe you played sport together. We make friends through our children as well. We have made some of our best friends through starting a family !!!

Forget about embarrassment. There is nothing to be embarrassed about. There are others out there with Epilepsy. That’s why it makes so much sense not to be embarrassed. I’m proud to say I don’t feel embarrassment about anything really. Perhaps this is because of my Epilepsy.I think it has made me stronger in a way. Yes, I like to be my best and make a good impression. We should always try and be our best. But, I try not to sweat the small stuff. I don’t care what others think of me. People out there don’t know your story, don’t know what you are doing with your life.

Remember your younger years ? Did you get called silly names ? Did you want to be one of the cool kids ? When we get older we realize how silly all of that was. If only I could have known what I know now 20 years ago.

We have made some ground here in New Zealand… we are slowly getting some events for people with Epilepsy in place. We still have a long way to go, but it is very encouraging. I’m very proud and excited to be part of it.

So please …..come out, come out wherever you are  !!!!

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 Do you like my t-shirt ?

I’m not afraid to wear it out !!!seize the day

Embarassment

Embarrassment

Embarrassment

Embarrassment – a feeling of self-consciousness, shame, or awkwardness.

Are you someone who suffers from embarrassment ? ” Suffer” probably isn’t the most appropriate word to use. Maybe I should say feel Embarrassment.
This is something that I have gotten past. Epilepsy has played a part in this.

I no longer feel silly. I’m happy to laugh at myself. I’m sure you have been told that we need to laugh at ourselves. There is no need to feel embarrassment because of Epilepsy, so it’s a good idea to spread that into the rest of your life.

When it comes to Epilepsy I always think of the fact that Epilepsy can become part of ANYONE’S life. In some ways I’m actually proud of Epilepsy. I’d be happy if I never had another seizure, but I’m somewhat proud of where I am and where I want to be in the future. Yes, I have my bad days, but don’t we all ?

We can’t live our life’s trying to please everyone, so that’s why you have to forget what others think. I even think of not caring what others think. That may sound like a bad attitude to some, but I assure you it isn’t. Once again, I know where I am at. I know who I am. I’m 34 years old.

I often say I wish I understood how I would feel now when I was in my late teens. Those teenage years, many stress about the likes of homework. 20 years later you have your children to think about and the likes of paying a mortgage. What about retirement ? Once I reached 30 though, I realised that there was no need to be cool when I was at school. This is something I’m determined to get through to my children. It puzzles me that many people are friends through Facebook, but if you saw these people in the street, they wouldn’t even look at you. Why not ? Surely everyone has moved on from their school days.

Embarrassment

If people want to worry about how you look, what your wearing, let them.  Just don’t worry about it yourself.

“The rate at which a person can mature is directly proportional to the embarrassment he can tolerate.” – Douglas Engelbart

“Most things in life are moments of pleasure and a lifetime of embarrassment; photography is a moment of embarrassment and a lifetime of pleasure.” – Tony Benn