So, it was back to school and kindy today !!
I always look forward to the school holidays when we can have a week or so together. It’s much more fun than my wife leaving early like she does and then I taking the kids where they need to be. Pretty enjoyable holidays as usual. The 2nd week always seems to go quicker than the first. Once the holidays have come to an end I’m kinda ready to carry on.
So, my daughter will be at school next year, so I’m very excited. It will be good no longer having the 10-15 minute walk to kindy. She still travels in the push- chair which she will do until she is finished there. We walk home after kindy. Next year it will be just down the street for both of them. School is only a few hundred metres away. Not even 5 minutes walk.
I’m often getting asked what I will be doing with myself, how I will full in my time. Not 100 % sure yet. My goal is to work from home. I’m slowly making progress with my online businesses. We’ll reaccess things at the end of the year.
My Epilepsy carries on. Looks like I have had about 7 episodes in the last month. That’s probably a bit of an increase. There was a stage I was having 2-3 a month, maybe 4. So, who knows why.
Most of these turns continue to be brought on by emotions. For example, yesterday we had friends for lunch. When they were about due to arrive, I heard a knock at the door. So, I went to open it…….But it turns out it was my son. He thought it was funny to pretend someone was there. Our friends may have arrived pretty soon after that. I must have gone and had a sleep. When I came out I didn’t really have much to say. It took me a while to get back to myself.
There still isn’t much progress when it come to the NZ Epilepsy Foundation. I actually missed last months meeting, but I will be going to this months in a couple of days.
So, 10 more weeks of school…..
What do you think of the photo ? Not bad for a 7 year old !!
Hey Hows it going ? I hope life is treating you well !!
Me ? Well , things are as usual. My days pretty much consist of taking kids to school and Kindy and doing the chores around our home. I spend a bit of time in front of the computer as well. I have a few projects in progress. Have you been enjoying the Olympics ? I wasn’t really that excited before it all started but I have been enjoying it.
Today I had my 2nd turn this month which I suppose isn’t too bad. My daughter and I were on the way to school to bring my son home. We are very lucky that it isn’t even 5 minutes walk away. I don’t think we realised how good it would be when we moved here a few years ago. I can’t wait until next year with both kids at school.
Anyway, back to my turn. We had pretty much got to school and my daughter saw a girl from her Kindy. They smiled at each other, kinda said hello. Both myself and the daughters mother noticed. Anyway, just as this happened, I felt a wee bit funny. As with 90 % ( maybe even more ) of my turns these days, I know it is happening. I think we wandered about school briefly. I must have been a bit out of it, a bit lost. But my son said I was at his classroom as usual, like I am everyday. I can’t remember that. I can’t remember the walk home either.
As I said, I know when most of my turns are going to happen. I think when I say to my wife that I feel like I’m going to have a turn, doing that scares it away. Sound a bit odd ?
So, the rest of the afternoon wasn’t much fun. I never really enjoy the afternoons that much . I got dinner ready and sorted out the days washing. I always look forward to my wife getting home . The main thing that used to bore me was the thought of entertaining the kids in the afternoons. Maybe I worried about it to much. They pretty much entertain themselves these days. They don’t sit and watch T.V in the afternoons. They do this in the morning though. It fills in the hour or so before it’s time to leave.
So, that’s today and things at the moment.
Most Children with Epilepsy should be able to attend normal mainstream schools. They should be able to take part in all activities. As long as the school is informed of the Epilepsy. I remember in my school days there were a few things I wasn’t allowed to take part in, which was a little bit silly. I was quite capable. There was a teacher or 2 that were quite aggressive. Because of a lack of understanding, one thought I was just messing around. At Polytech ( Tertiary Education), I studied Landscape Design. We did alot things in gardening, such as spraying. I was never allowed to do that. Once again, it seemed silly. I come from a Dairy farming family and I was very active on the farm. I had my own motorbike from a young age.
Its may be a good idea to involve other children in ones Epilepsy as well. How ? Well, If they are told about ones Epilepsy, they can learn what to do when a seizure occurs. It will show the children that there is no reason to be scared or panic.
There may be some that won’t be able to attend school. This may be the case if they have many seizures. When I hear of people that have many seizures a day, I think about how lucky I am. Some children may have additional problems. Maybe their Epilepsy leads to learning or physical difficulties. Many children these days seem to have learning issues. I sometimes wonder how real it all is. These sort of issues weren’t as common when I was at school.
My education was effected by my Epilepsy. When it arrived , I was 13-14. I had a few side effects such as gaining weight and tiredness. That’s funny, because since then I have had opposite effects. I have felt that I can really eat anything and not gain weight. I still try to not eat to much junk. Also with the sleeping. I’m not the best of sleepers. I’m often asleep in front of the T.V at 7pm, but only end up spending 3-4 hours in bed. HABIT , HABIT, HABIT. Alot of this is due to bad habits. There have been times that I have improved my sleeping. But then I go back to bad habits.
So, I am still very motivated to get Epilepsy out in the public. We need to get more people understanding it. I won’t stop until I am part of achieving this.
So, what a 10 days, 2 weeks. We are now in school holiday mode. The first term has flown by. It seems like just yesterday it was Christmas. The last week of the school term was very much an eventful one though. On the Monday ( 30th March ), I arrived at kindy to pick my daughter up and …. I found my father there. Why ?
Well, my parents had received a call from my wife’s school ( where she works ) to say she was on her way to hospital in an Ambulance. She had some funny vision, then sounds like she pretty much just collapsed. So, we were on our way to the hospital. When we got there, we found her fast asleep. This was the result of a Migraine. This surprised me, because that morning she had said how she felt good, and it was the first morning in a while that she didn’t have a headache. So, I spent the whole afternoon with her. She had a couple of things given by drip plus a few check overs from a doctor.
We were finally able to leave at 6pm. So, what a day. That one came out of nowhere. So, we thought that she would have one day off school, but her workmates were adamant she should take the rest of the week off. This ended up been the case, with Friday been a public holiday for Easter. We had plans to go away Easter Friday. We were unsure whether we would be able to go with those. How would Alie be to drive ? Turned out she was fine, so Friday morning we were off before 9am. We went and stayed for a night at the beach with my parents. Then after that we carried on to Gisborne to Alie’s parents, another 3 and a half hours drive. We had a new nephew to meet in Gisborne, born in February. So, a couple of nights in Gisborne , then another night at the beach on the way home. 4 nights away from home in total. It’s so handy Mum and Dad having the place at the beach when traveling to Gisborne. It helps to break the trip up a little. Easter. I’m not a religious person. The Bible is for some people, not for others. I’m happy for people who believe in God, but that’s not for me. I’ve heard a lot of talk about the Easter Bunny over the last week or 2. It has become a bit boring !! So, looking forward to the rest of the 2 week school holidays. Then it will be back to the normal rountine. Got my mothers 60th birthday this weekend !!
SEE YA LATER !!!