The First Seizure & Diagnosis Of Epilepsy

Most people experience a sense of shock, fear and panic when seeing a seizure for the first time. That is completely understandable.

Many people have very little understanding of Epilepsy… well, that’s what I have found. The best thing to do is offer moral support.

So, as you may know,a person having a Tonic – Clonic / Grand Mal Seizure should be laid on their side. This is once any convulsions have stopped. Something soft should be put under their head. Nothing SHOULD EVER be put in ones mouth when having a seizure.

ambo

Is it worth calling an Ambulance ?  If people understand the Epilepsy, it may not be required. This is something that has been frustrating over the years for myself. I now pay an annual membership fee to St John ( NZ Ambulance Service ). It is $80 a year and this covers our whole family. It’s very much worth it , because if you aren’t a member and receive their service, you are charged MORE THAN $80. I can’t recall exactly what it is.

It is important to make sure the history of what happened is recorded. Personally, I write about every seizure I have.

What happened ?

Why did it happen  ?

Where did it happen ?

By keeping record of my seizures / turns , I can see whether my number of turns is increasing or decreasing. It’s always interesting to count them once we reach the end of the month. It seems like my turns have increased a wee bit over the last 12 months.

We must remember that there are other conditions that cause a person to have a seizure like episode. Perhaps someone may jerk and twitch, fall down or lose consciousness.This isn’t necessarily Epilepsy. The likes of an E.E.G / Scans looks further into this. All the Scans , etc , that I have ever had have never shown an reason for my Epilepsy.

BUT HEY !!! LIFE GOES ON !!!

 

bryce rae

Not the best of days…

Today has been one of those days. You know , right ?
What I mean is a day when things aren’t much fun, you look forward to when the day is over. I felt a bit frustrated this morning. The usual bit of silliness that happens when the kids are having breakfast. My wife leaves just after 7 in the mornings, so it’s just me when the kids are eating. I often tell them to stop mucking around and eat their breakfast. They complain that the other is looking at them !! CRAZY KIDS !!!

Continue reading “Not the best of days…”

V Drink

Does V Drink = Seizures ?

How many out there with Epilepsy think about what they eat or drink ?
Do you really think what you eat or drink effects your seizures ?
I think it probably does, but what extremes do you want to go to.
Yes, I think we all know that Alcohol is something to keep away from.
I do keep away from Alcohol. I have the odd drink here and there, but it would only equal one drink a month…..if even that.

As we know, fruit , veges and water are the keys. The world is becoming more and more obese every day. Our household has veges at least every 2nd night.

In July and August, I had 4 turns ( seizures ) each month. But there is something that could be contributing to this. I have a drink of V once a week. I have being seeing this as my little treat. V is a drink that is very high in Sugar.

V contains –

Sucrose, Guarana, Caffeine, B Vitamins, Taurine   drinking V

It’s interesting to read up on these ingredients. We all know that everyone should be careful with their Caffeine intake. I have never been a coffee or tea drinker. I do have a milo / hot chocolate with my breakfast, but that’s pretty much it. I’m sure you know someone that has many cups of tea or coffee every day.

I have read that energy drinks can interact with medication, so this could be the case with myself. I have tried to go by the policy of moderation. Moderation is the key to everything. This is why I only ever have one V drink a week. I don’t like paying for them either, but we have to treat ourselves occasionally. I feel a bit guilty sometimes for spending the $3-4 dollars (NZ) the V costs. I usually buy 500 mls.

I haven’t had a V in about 10 days now. So, I’ll try and completely stop drinking them. We’ll see if this has any effect on things.

Life is so much about routines and habits. I think you can look at so many things like this. There are so many things that people start , then they can’t stop. This can be from smoking and drinking or even children needing their teddy bear in bed at night. Crazy comparison ? My wife says it is. I say that because there are times when our son has come in to us in the middle of the night because he can’t find his teddy. I think if children weren’t given soft toys when they are first born, they would be fine without them.

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I have already discussed drinking tea and coffee. I never started in my early or late teens, so I don’t do it now. It’s all about starting things. If you never start doing certain things, you won’t find yourself having to stop.

Sorry if you find a few things I said sound rather bizarre.

All the best
🙂

Not The Best Day

I didn’t have the best day yesterday. It was the usual start. My wife left at about 7:15 for her 20-30 minute drive to work. Its always about then that the kids are sitting at the table eating their breakfast. I always have to tell them to be quiet, carry on eating , etc. Every day is the same. It can be pretty frustrating. So, it was that sort of morning, plus I had quite a few other things running through my head.

So, at 7:30- 8 am , it’s always brush teeth time. It’s always about 8:30 that we leave for our walk to school and then kindy.  At about 7:30 or so, the doorbell went. I went and answered the door. There was a Courier Man there with a parcel for us. I then remembered that he was going to be coming. .  But, that is the last I can remember of him.

Next thing I remember is walking along the foot path in my slippers. I eventually ended up back at home. The front door had been pushed towards been shut, but not completely. I went in and there was no one there.

So, I gave my wife a call. She said she was on her way home.  She also told me the kids were just down the street at my sons friends house. Sounds like I had taken off and the Courier Man was unable to stop me. My son asked the Courier Man to take them to his friends house. Well Done !! So, I got on my way there. Just as I got onto the street, our Neighbour arrived. So, him and I walked to their house. There were my kids !!

So, we came home again. Next thing ya know, about 8:30, my wife was home again. I wish she hadn’t come home for the day. I’m sure my parents could have helped us out. So, from there, she took our girl to kindy , and my son and I walked to school, which is not even 5 minutes walk away.

I rang the Courier Company and found out who had made the delivery. They told me so I personally rang the man and told him how grateful we were that he took care of the kids by taking them down the street.

So, I had a day with my wife at home. After lunch we ( including our daughter) went to the local shopping centre to do a couple of things.

So, frustrating for me !! Frustrating because it meant my wife missed a day at work. It just makes you feel bad because you messed everything up.

I felt ok this morning, and I was really. I was a little funny when I left kindy though. (after dropping my daughter there). I stood on the footpath and wondered how long I had until I had to be back, or some reason I was thinking I didn’t want to go to far.  One of the teachers came out to see whether I was ok. I said to her that it seems like there is several periods throughout the day, like there was when I was at school. EG: 6 one hour periods. At first I was dreaming I had to be back in a short time. But, I came right and continued on my way home. Apart from that, which only lasted a few minutes I suppose  I’ve been fine today.