The First Seizure & Diagnosis Of Epilepsy

Most people experience a sense of shock, fear and panic when seeing a seizure for the first time. That is completely understandable.

Many people have very little understanding of Epilepsy… well, that’s what I have found. The best thing to do is offer moral support.

So, as you may know,a person having a Tonic – Clonic / Grand Mal Seizure should be laid on their side. This is once any convulsions have stopped. Something soft should be put under their head. Nothing SHOULD EVER be put in ones mouth when having a seizure.

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Is it worth calling an Ambulance ?  If people understand the Epilepsy, it may not be required. This is something that has been frustrating over the years for myself. I now pay an annual membership fee to St John ( NZ Ambulance Service ). It is $80 a year and this covers our whole family. It’s very much worth it , because if you aren’t a member and receive their service, you are charged MORE THAN $80. I can’t recall exactly what it is.

It is important to make sure the history of what happened is recorded. Personally, I write about every seizure I have.

What happened ?

Why did it happen  ?

Where did it happen ?

By keeping record of my seizures / turns , I can see whether my number of turns is increasing or decreasing. It’s always interesting to count them once we reach the end of the month. It seems like my turns have increased a wee bit over the last 12 months.

We must remember that there are other conditions that cause a person to have a seizure like episode. Perhaps someone may jerk and twitch, fall down or lose consciousness.This isn’t necessarily Epilepsy. The likes of an E.E.G / Scans looks further into this. All the Scans , etc , that I have ever had have never shown an reason for my Epilepsy.

BUT HEY !!! LIFE GOES ON !!!

 

bryce rae

ALERT , ALERT !!! Medic Alert

 

 

http://www.positiveepilepsy.com

 

So, Medic Alert ….

Medic Alert is a way your information is kept about your health issue. You wear a wristband / bracelet or something around your neck. On there is what health issue you have, plus a pin number. Do you have something like this where ever you live in this big wide world ?

So say something happens and you end up in the arms of Medical staff, they can look at Medic Alert and see why whatever happened may have happened. Perhaps they will discover there are some drugs you can’t take. I know a few people that wear Medic Alert for this reason. Of course, mine is for my Epilepsy. One thing we haven’t done is kept my info up to date. I should go through my doctor and get things signed off. This would be what medication I take, etc. My medication has changed many times over the years.

I  always wear mine around my neck. I have worn a wrist band a few times, but it annoys me a bit. I guess it is something you’d get used to.

I recently received an email from Medic Alert. They were asking me to fill in a survey about my experiences . The main question was whether I had had any experience of medical staff missing my Medic Alert / not taking notice of it. This has happened to me several times.

I had a seizure ( turn) one day when I was picking my son up from school. Even though I probably would have been fine, some thought I was having a heart attack. So, the Ambulance arrived. Did they see my Medic Alert around my neck ? NO !! Don’t you think they should have looked for it ?

So from the look of the survey, it sounds like there has been other people go through this. We pay a yearly fee for my family to be covered for Emergency services like this. I think we pay about $90 a year.  Without this , it would pretty much cost that for using their services just once. So it’s good it covers all 4 of us.

Our Ambulance service comes from St John . They rely heavily on donations/ fundraising  from the public. Perhaps the government could assist them a bit more.

 

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